Real-World Research to Improve Dementia Care
Embedding Pragmatic Trials of Non-Drug Interventions
- 1st Edition - July 1, 2026
- Latest edition
- Editors: Jill Harrison, Vincent Mor
- Language: English
Real-World Research to Improve Dementia Care: Embedding Pragmatic Trials of Non-Drug Interventions addresses the urgent need for effective care strategies for the over 50 millio… Read more
By highlighting both the challenges and solutions in dementia care, this book serves as a vital resource for healthcare professionals and researchers. It advocates for a compassionate approach that values the voices of individuals living with dementia, ultimately aiming to improve their quality of life.
- Explores innovative case studies that demonstrate successful interventions in dementia care across diverse settings
- Guides on community partners to facilitate collaborative research aimed at improving outcomes for individuals with dementia
- Covers the ethical and regulatory challenges unique to conducting research involving vulnerable populations
- Identifies effective measures that resonate with the experiences and needs of people living with dementia and their caregivers
- Presents emerging technologies that promise to transform dementia research and care practices for the future
2. Engaging Partners to Improve Dementia Care
3. Building Research and Community Partnerships in Home Care and Hospice to Conduct Pragmatic Trials
4. Research Methods in Embedded Pragmatic Trials
5. Addressing Disparities and Inequities in Research to Improve Dementia Care
6. Selecting Measures that Matter to People Living with Dementia and Care Partners
7. Anticipating and Addressing Ethical and Regulatory Challenges in Embedded Pragmatic Trials Involving People Living with Dementia
8. Implementing Interventions to Improve Dementia Care: Understanding Mechanisms of Action in Embedded Pragmatic Clinical Trials in Home and Community Settings
9. Emerging Technologies: The Future of Dementia Research
10. Introduction to Case Studies
10a. Case Study 1: Music and Memory: A Pragmatic Trial for Nursing Home Residents With Alzheimer's Disease
10b. Case Study 2: Improving How People Living with Dementia are Selected for Care Coordination: Pragmatic Clinical Trial Embedded in an Accountable Care Organization
10c. Case Study 3: Overcoming Challenges to Recruiting Caregivers in Dementia Care Research
10d. Case Study 4: Implementation of Dementia-Friendly and Age-Friendly Health System Programs across Settings of Care
10e. Case Study 5: INTERACT: Large Scale Research Partnerships with Long-Term Care Communities
10f. Case Study 6: Strategies Associated with COVID-19 Vaccine Coverage among Nursing Home Staff
10g. Case Study 7: A Cluster-randomized Trial of Adjuvanted Versus Nonadjuvanted Trivalent Influenza Vaccine in 823 US Nursing Homes
10h. Case Study 8: Detection of Dementia in the Emergency Department
10i. Case Study 9: ALIGN: Case Study in De-prescribing for Dementia
10j. Case Study 10: The PROTECT Trial: Partnering with Nursing Homes to Reduce Infections
11. Resources to Design, Fund, and Conduct a Pragmatic Trial to Improve Dementia Care
12. Conclusion
- Edition: 1
- Latest edition
- Published: July 1, 2026
- Language: English
JH
Jill Harrison
Jill Harrison, PhD, is an Executive Director at the NIA IMPACT Collaboratory and an Associate Professor of Practice in the Department of Health Services, Policy and Practice at Brown University School of Public Health. Prior to joining the IMPACT Collaboratory, Dr. Harrison served as the Director of Research for an international non-profit advocacy organization, founded by a patient and focused on implementing person-centered care initiatives in healthcare organizations in 27 countries. She served on the advisory panel for patient engagement at the Patient-Centered Outcomes Research Institute (PCORI) and was the principal investigator of a PCORI Engagement Award about how patient-family advisory councils engage in research. Her research interests include: pragmatic trials in real-world settings, engaging residents of long-term care communities as evaluators of care quality, developing culturally congruent person-centered care approaches in healthcare systems, and organizational cultural change. She completed her post-doctorate at Brown University in health services research.
VM
Vincent Mor
Vincent Mor, PhD, is a Professor of Health Services, Policy & Practice and Florence Pirce Grant Professor in the Brown University School of Public Health and has been principal investigator of 40+ NIH-funded grants focusing on use of health services and outcomes of frail and chronically ill people. He has evaluated the impact of programs and policies including Medicare funding of hospice, changes in Medicare nursing home payment, and the introduction of nursing home quality measures. He co-authored the Congressionally-mandated Minimum Data Set (MDS) and was architect of an integrated Medicare claims and clinical assessment data structure used for policy analysis, pharmacoepidemiology and population outcome measurement. These data resources are the heart of Dr. Mor’s NIA- funded Program Project Grant, “Changing Long Term Care in America,” which examines the impact of Medicaid and Medicare policies on long-term care.