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Rare and Complex Urology

1st Edition - February 1, 2024

Editors: Wout Feitz, Jen Tidman

Paperback ISBN:

9 7 8 - 0 - 3 2 3 - 9 9 9 3 4 - 2

Rare and Complex Urology has been produced by the European Reference Network (ERN) for rare urogenital diseases and complex conditions, ERN eUROGEN.The book combines information… Read more

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Rare and Complex Urology has been produced by the European Reference Network (ERN) for rare urogenital diseases and complex conditions, ERN eUROGEN.The book combines information on network developments and clinical and surgical aspects, allowing for better diagnoses, treatments, and patient outcomes.The expertise areas covered include those relating to the bladder, stone and kidney diseases, congenital malformations, pelvic floor disorders, the urethra, reconstruction, and rare cancers and tumours.This is a must-have reference for clinicians and basic scientists interested in translational urology and surgery, including urologists, paediatric surgeons, and multidisciplinary team members seeking guidance on how to implement novel research.

Introductory Chapters

1. Introduction: ERN eUROGEN and Knowledge Exchange
Wout Feitz

2. The European Association of Urology and ERN eUROGEN
Christopher Reginald Chapple

Overview Chapters

3. ERN eUROGEN: Impact and Innovations for Rare & Complex Urology
Wout Feitz

4. The Patient View on the ERN Programme: Share, Care, Cure and Pathways
Dalia Aminoff

5. Cross-ERN Actions and Collaborations by ERN eUROGEN
Michelle Battye

6. Development of the ERN eUROGEN Patient Registry
Loes van der Zanden

7. Development of ERN eUROGEN Clinical Practice Guidelines (CPGs) and Clinical Decision Support Tools (CDSTs)
Jen Tidman, Wout Feitz, Ramnath Subramaniam, Dalia Aminoff, Juan Antonio Blasco-Amaro, Beatriz Carmona-Hidalgo, Lourdes González-Bermúdez, Carmen Martín-Gómez, Elena Stallings, María José Vicente-Edo and Patricia Gavín Benavent

Clinical Chapters

Workstream 1

8. EA 1.1: Complex Genital Reconstructions; Differences in Sex Development
Verena Ellerkamp, Katja Wolfenbuttel and Raimund Stein

9. EA 1.2: Bladder Exstrophy/Epispadias
Alaa El Ghoneimi

10. EA 1.3: Rare Urologic Stone and Kidney Disease
Alaa El Ghoneimi

11. EA 1.4: Non-Syndromic Urogenital Tract Malformation
Giovanni Mosiello

12. EA 1.5: Posterior Urethral Valves
Yazan F. Rawashdeh

13. EA 1.6: Proximal hypospadias
Magdalena Fossum

14. EA 1.7: Urorectal/Anorectal Malformation
Ivo de Blaauw

Workstream 2

15. EA 2.1: Complicated and Complex Pelvic Floor Disorders
John PFA Heesakkers

16. EA 2.2: Rare Diseases and Conditions Affecting the Female Urethra
Jose Medina-Polo

17. EA 2.3 Urethral Reconstruction in Rare Diseases and Conditions
Gunter de Win

18. EA 2.4: Rare Retroperitoneal Diseases and Conditions
Mariangela Mancini

19. EA 2.5: Bladder pain syndrome/Interstitial cystitis (BPS/IC)
Mariangela Mancini

20. EA 2.6: Adult Urogenital Reconstructive Surgery
Laetitia de Kort

21. EA 2.7: Surgery for Transgender Patients
Silke Riechardt, Timo Nieder, Katharina Grupp and Benjamin Meister

Workstream 3

22. EA 3.1: Penile Cancer
Oscar Brouwer

23. EA 3.2: Testicular Cancer
Yue Che

24. EA 3.3: Adrenal Tumours
Hans (Johan) F. Langenhuijsen

25. EA 3.4: Abdomino-Pelvic Sarcoma
Mariangela Mancini

26. EA 3.5: Rare Renal Tumour Surgery
Matthieu Peycelon

Wout Feitz

Prof. dr. W.F.J. Feitz studied Medicine in Nijmegen. He specialized in Urology (Fellow of the European Board of Urology) and specialized further in the field of Pediatric Urology (Fellow of the European Academy of Paediatric Urology). In 1993, he was appointed as Pediatric Urologist at the Department of Urology of the Radboud University Nijmegen Medical Centre. In 2001 he became associate professor and on 1 November 2006 full professor in Pediatric Urology at the Radboud University Nijmegen. The Pediatric Urology research program concerns congenital anomalies of the Urinary Tract and involves multidisciplinary collaborations within the research programs of the RUNMC and NCMLS and national and international collaborations. It involves the epidemiological and genetic aspects of congenital Urinary Tract Anomalies and Regenerative Urology and Tissue Engineering. He is currently the coordinator of the EU program EuroSTEC Soft tissue engineering for congenital birth defects (www.EuroSTEC.eu), advisor for the EU MultiTERM program (www.multitermproject.eu) and Program director of the training program for Pediatric Urology for the European Paediatric Urology Fellowship Program of The Joint Committee of Paediatric Urology (JCPU) of the EUMS, RUNMC (www.espu.org). He is the mentor of different student programs and an EUSP program for Pediatric Urology research in the field of tissue engineering.

Affiliations and expertise

Professor of Pediatric Urology, Department of Urology, Radboudumc Amalia Children's Hospital, Nijmegen, The Netherlands

Jen Tidman

Jen Tidman is an experienced executive administrator, communications expert, and project manager with a demonstrated history of working in healthcare and publishing. She has studied at the University of Sheffield (BA Journalism Studies), Robert Gordon University (PGCert Publishing Studies), and The Open University (BSc Psychology) and has worked in the field of urology since 2004. From 2006-2015 she was the Managing Editor of the medical journal Neurourology & Urodynamics. She provided editorial support for the book “Urogenital Infections” published in 2010 by the European Association of Urology (EAU) and the International Consultation on Urological Diseases (ICUD). She worked on the initial application to form ERN eUROGEN, and following its official launch in 2017, she was appointed as the network’s Business Support Manager. Her responsibilities include project management, administration, and communication and dissemination.

Affiliations and expertise

ERN eUROGEN Business Support Manager, Department of Urology, Radboudumc Amalia Children's Hospital, Nijmegen, The Netherlands