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Primary Care of Children with Chronic Conditions
- 1st Edition - March 16, 2024
- Author: Cheri Barber
- Language: English
- Paperback ISBN:9 7 8 - 0 - 4 4 3 - 1 0 6 9 5 - 8
- eBook ISBN:9 7 8 - 0 - 4 4 3 - 1 0 7 2 6 - 9
Provide comprehensive primary care for the growing number of children with chronic conditions. Featuring contributions from more than 50 expert nurse practitioners and their… Read more
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Request a sales quoteProvide comprehensive primary care for the growing number of children with chronic conditions. Featuring contributions from more than 50 expert nurse practitioners and their interprofessional colleagues, Primary Care of Children with Chronic Conditions offers expert guidance on the management of children with special needs and their families. Comprehensive coverage presents the most current knowledge and insights available on these specific conditions, including information on the COVID-19 pandemic. This valuable resource helps providers improve pediatric care for chronic conditions and addresses the need for transitional care to adulthood and the issues and gaps in healthcare that may hinder the quality of care for this unique population.
- The only book authored by Nurse Practitioners and their colleagues focusing on managing the primary health care needs of children with chronic conditions.
- More than 50 expert contributors provide the most current information available on specific conditions.
- Comprehensive summary boxes at the end of chronic conditions chapters provide at-a-glance access to key information.
- Full-color format enhances readability and highlights key information for quick access.
- Up-to-date references ensure access to the most current, evidence-based coverage with the latest research findings and management protocols.
- Cover image
- Title page
- Copyright
- Dedication
- Acknowledgments
- Reviewers
- Contributors
- Preface
- Contents
- PART I CONCEPTS IN PEDIATRIC PRIMARY CARE
- 1 The Primary Care Provider and Systems of Care
- THE HEALTH OF AMERICA’S CHILDREN
- CHILDREN AND YOUTH WITH SPECIAL HEALTH CARE NEEDS
- INEQUALITIES IN CHILD HEALTH
- PRIMARY CARE MANAGEMENT
- SUMMARY
- RESOURCES
- REFERENCES
- 2 Chronic Conditions and Child Development
- CHARACTERISTICS OF THE CONDITION
- CHARACTERISTICS OF THE CHILD
- INDIVIDUAL CHARACTERISTICS
- ROLE OF FAMILY AND SOCIAL NETWORKS
- DEVELOPMENTAL PERSPECTIVES OF THE BODY, ILLNESS, MEDICAL PROCEDURES, AND DEATH
- PRIMARY CARE PROVIDER’S ROLE IN PROMOTING DEVELOPMENT
- SUMMARY
- RESOURCES
- REFERENCES
- 3 School and the Child With a Chronic Condition
- ROLE OF SCHOOL IN A CHILD’S LIFE
- LAWS ON EDUCATION OF CHILDREN WITH CHRONIC CONDITIONS
- ROLE OF HEALTH PROFESSIONALS IN DETERMINING SPECIAL EDUCATION SERVICES
- FRAMEWORKS THAT GUIDE SCHOOL NURSING PRACTICE
- ROLE OF THE SCHOOL NURSE
- SUMMARY
- RESOURCES
- REFERENCES
- 4 Transitions to Adulthood
- ADOLESCENT TRANSITION TO ADULTHOOD
- UNDERSTANDING TRANSITION
- ADOLESCENCE AND EMERGING ADULTHOOD: A UNIVERSAL TIME OF CHANGE
- FACTORS MODERATING INDIVIDUAL TRANSITION
- DEVELOPMENTAL STAGES AND TRANSITION PLANNING
- BARRIERS TO HEALTH CARE TRANSITION
- FACTORS MODERATING TRANSITION
- TRANSITION PLANNING IN THE SCHOOL SYSTEM
- POSTSECONDARY EDUCATION
- VOCATIONAL TRAINING AND THE TRANSITION
- TRANSITION FROM HOME TO COMMUNITY LIVING
- COORDINATION OF TRANSITION PLANNING
- RESOURCES
- REFERENCES
- 5 Ethics and the Child With a Chronic Condition
- DECISION MAKING ALONG THE COURSE OF CHRONIC CONDITIONS
- THE ETHICAL DOMAIN
- A MORAL FRAMEWORK FOR DECISION MAKING
- ETHICS OF CARE
- THE PROCESS OF DECISION MAKING
- STRATEGIES FOR ETHICAL DECISION MAKING
- STRATEGIES FOR DEALING WITH CONFLICT
- SUMMARY
- RESOURCES
- REFERENCES
- 6 Managing Chronic Conditions via Telehealth
- INTRODUCTION
- OVERVIEW OF TELEHEALTH
- PANDEMIC IMPLICATIONS: NEW AREAS OF CHRONIC CARE
- TELEHEALTH APPLICATIONS IN PEDIATRIC CHRONIC CARE MANAGEMENT
- SCHOOL-BASED TELEHEALTH FOR PEDIATRIC CHRONIC CARE MANAGEMENT
- IMPLEMENTING A TELEHEALTH PROGRAM
- FUTURE STATE
- SUMMARY
- CASE STUDY
- KEY POINTS
- RESOURCES FOR TELEHEALTH
- REFERENCES
- PART II CHRONIC CONDITIONS
- 7 Asthma and Allergies
- ASTHMA
- TESTING
- DIFFERENTIAL DIAGNOSIS
- ALLERGIES
- PRIMARY CARE MANAGEMENT FOR ASTHMA AND ALLERGY
- RESOURCES
- REFERENCES
- 8 Anxiety Disorders and Obsessive-Compulsive Disorder
- INTRODUCTION
- INCIDENCE AND PREVALENCE OF ANXIETY IN CHILDREN AND ADOLESCENTS
- ANXIETY DISORDERS AND OBSESSIVE-COMPULSIVE DISORDER
- ASSESSMENT OF ANXIETY DISORDERS AND OBSESSIVE-COMPULSIVE DISORDER IN A CLINICAL SETTING
- TREATMENT OF ANXIETY DISORDERS AND OBSESSIVE-COMPULSIVE DISORDER
- CONCLUSION
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 9 Attention-Deficit/Hyperactivity Disorder
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- ADHD IN PRESCHOOL CHILDREN
- ADHD IN OLDER ADOLESCENTS AND ADULTS
- TREATMENT
- ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
- ASSOCIATED PROBLEMS OF ADHD AND TREATMENT
- PSYCHOSOCIAL AND HEALTH-RELATED SEQUELAE
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 10 Autism Spectrum Disorder
- INTRODUCTION
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- IDENTIFICATION AND DIAGNOSTIC ASSESSMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- COMMON MEDICAL ILLNESS MANAGEMENT
- ALLIED HEALTH AND EDUCATIONAL SUPPORTS
- COMPLEMENTARY AND ALTERNATIVE APPROACHES
- LIFESPAN CONSIDERATIONS
- RESOURCES
- REFERENCES
- 11 Bleeding Disorders
- PATHOPHYSIOLOGY
- HEMOPHILIA
- VON WILLEBRAND DISEASE
- THE FUTURE: ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT OF BLEEDING DISORDERS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 12 Bone Marrow Transplantation
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- TREATMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 13 Cancer
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSIS AND TREATMENT OPPORTUNITIES
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 14 Celiac Disease
- ETIOLOGY
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
- ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
- ASSOCIATED PROBLEMS OF CELIAC DISEASE AND TREATMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 15 Cerebral Palsy
- CLASSIFICATION OF CEREBRAL PALSY
- SEVERITY
- INCIDENCE AND PREVALENCE
- ETIOLOGY AND RISK FACTORS
- Diagnosis
- TREATMENT
- RESOURCES
- REFERENCES
- 16 Cleft Lip and Palate*
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS AT TIMEOF DIAGNOSIS
- TREATMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 17 Congenital Adrenal Hyperplasia*
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
- TREATMENT
- ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
- ASSOCIATED PROBLEMS OF CONGENITAL ADRENAL HYPERPLASIA AND TREATMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 18 Congenital Heart Disease
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- PATHOPHYSIOLOGY
- CONGENITAL HEART DISEASES
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS AT TIMEOF DIAGNOSIS
- TREATMENT
- ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
- ASSOCIATED PROBLEMS OF CONGENITAL HEART DISEASE AND TREATMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 19 Cystic Fibrosis
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS
- TREATMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 20 Diabetes Mellitus (Types 1 and 2)
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
- TREATMENT
- PRIMARY CARE MANAGEMENT
- RESOURCES
- References
- 21 Down Syndrome
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
- TREATMENT
- ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
- ASSOCIATED PROBLEMS OF DOWN SYNDROME AND TREATMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 22 Eating Disorders
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
- PHYSICAL HEALTH ASSESSMENT
- TREATMENT
- ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
- ASSOCIATED PROBLEMS OF EATING DISORDERS
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- PREVENTION
- HEALTH MAINTENANCE
- RESOURCE
- REFERENCES
- 23 Epilepsy
- EPIDEMIOLOGY
- ETIOLOGY
- DIAGNOSIS
- TREATMENT
- COMORBIDITIES
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 24 Fragile X Syndrome
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
- TREATMENT
- ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
- ASSOCIATED PROBLEMS OF FRAGILE X SYNDROME AND TREATMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- READING FOR CHILDREN
- REFERENCES
- 25 Human Immunodeficiency Virus Infections and Acquired Immunodeficiency Syndrome
- EPIDEMIOLOGY
- PATHOGENESIS AND TRANSMISSION
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
- TREATMENT
- CONDITIONS ASSOCIATED WITH HIV INFECTION
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 26 Hydrocephalus
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
- TREATMENT
- ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
- ASSOCIATED PROBLEMS OF CONDITION AND TREATMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 27 Inflammatory Bowel Disease
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DISEASE CLASSIFICATION AND DIAGNOSTIC CRITERIA
- DIAGNOSTIC EVALUATION
- CLINICAL MANIFESTATIONS
- TREATMENT
- IBD-ASSOCIATED PROBLEMS
- PROGNOSIS AND FUTURE ADVANCES
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 28 Juvenile Idiopathic Arthritis
- ETIOLOGY
- CLINICAL MANIFESTATIONS
- TREATMENT
- ASSOCIATED PROBLEMS OF JUVENILE IDIOPATHIC ARTHRITIS AND TREATMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- ACKNOWLEDGMENT
- REFERENCES
- 29 Kidney Disease, Chronic
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
- TREATMENT
- ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
- ASSOCIATED PROBLEMS OF CHRONIC KIDNEY DISEASE AND TREATMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- LAB WORK.
- RESOURCES
- OTHER ONLINE RESOURCES
- REFERENCES
- 30 Mood Disorders: Behavioral and Developmental Influences
- DEVELOPMENTAL CONSIDERATIONS
- ROLE OF APRN IN CARING FOR PEDIATRIC/ADOLESCENT/YOUNG ADULTS WITH MOOD DISORDERS
- SOCIAL DETERMINANTS OF HEALTH AND PSYCHOLOGICAL FACTORS
- ETIOLOGY AND PATHOPHYSIOLOGY OF DEPRESSION
- INFANT-CHILD-ADOLESCENT DEVELOPMENT
- DISRUPTIVE MOOD DYSREGULATION DISORDER (ICD-10 F34.81)
- BIPOLAR AND RELATED DISORDERS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- INTERNET RESOURCES
- REFERENCES
- 31 Muscular Dystrophy, Duchenne
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
- TREATMENT
- ASSOCIATED PROBLEMS OF DUCHENNE MUSCULAR DYSTROPHY AND TREATMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 32 Obesity
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- TERMINOLOGY AND UNCONSCIOUS BEHAVIOR
- CLINICAL MANIFESTATIONS
- TREATMENT
- PARENTING CONSIDERATIONS
- CLINICAL CHALLENGES OF WEIGHT MANAGEMENT
- PRIMARY CARE MANAGEMENT
- RESOURCES
- CLINICIAN RESOURCES
- REFERENCES
- 33 Organ Transplantation
- SOLID ORGAN TRANSPLANTATION
- PREVALENCE OF SOLID ORGAN TRANSPLANTATION
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS FOR TRANSPLANTATION CONSIDERATION
- MANAGEMENT AND TREATMENT
- ADVANCES IN DIAGNOSIS AND MANAGEMENT
- COMPLICATIONS OF SOLID ORGAN TRANSPLANTATION AND MANAGEMENT
- THE FUTURE OF PEDIATRIC TRANSPLANTATION
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 34 Phenylketonuria
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
- TREATMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 35 Prematurity
- INCIDENCE AND PREVALENCE
- PREVENTION
- ASSOCIATED CONDITIONS OF THE PRETERM INFANT
- NUTRITION IN THE NICU
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 36 Sickle Cell Disease
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
- TREATMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 37 Spina Bifida
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS
- TREATMENT
- ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
- ASSOCIATED PROBLEMS OF SPINA BIFIDA AND TREATMENT
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 38 Tourette Syndrome
- ETIOLOGY
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
- TREATMENT
- ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
- OUTCOMES FROM THE PANDEMIC
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- 39 Traumatic Brain Injury
- ETIOLOGY
- PHYSICAL MECHANISMS OF INJURY
- ABUSIVE HEAD TRAUMA
- INCIDENCE AND PREVALENCE
- DIAGNOSTIC CRITERIA
- DIAGNOSTIC IMAGING
- TREATMENT
- ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
- ASSOCIATED PROBLEMS OF TRAUMATIC BRAIN INJURY
- PROGNOSIS
- PRIMARY CARE MANAGEMENT
- RESOURCES
- REFERENCES
- Index
- No. of pages: 972
- Language: English
- Edition: 1
- Published: March 16, 2024
- Imprint: Elsevier
- Paperback ISBN: 9780443106958
- eBook ISBN: 9780443107269
CB
Cheri Barber
Affiliations and expertise
Clinical Associate Professor,DNP Program Director ,PNP Programs Coordinator,UMKC School of Nursing & Health Studies