Primary Care of Children with Chronic Conditions

1st Edition - March 16, 2024
Author: Cheri Barber
Language: English
Paperback ISBN:
9 7 8 - 0 - 4 4 3 - 1 0 6 9 5 - 8
eBook ISBN:
9 7 8 - 0 - 4 4 3 - 1 0 7 2 6 - 9
eBook ISBN:
9 7 8 - 0 - 4 4 3 - 1 0 7 2 7 - 6

Provide comprehensive primary care for the growing number of children with chronic conditions. Featuring contributions from more than 50 expert nurse practitioners and their… Read more

Primary Care of Children with Chronic Conditions

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Provide comprehensive primary care for the growing number of children with chronic conditions. Featuring contributions from more than 50 expert nurse practitioners and their interprofessional colleagues, Primary Care of Children with Chronic Conditions offers expert guidance on the management of children with special needs and their families. Comprehensive coverage presents the most current knowledge and insights available on these specific conditions, including information on the COVID-19 pandemic. This valuable resource helps providers improve pediatric care for chronic conditions and addresses the need for transitional care to adulthood and the issues and gaps in healthcare that may hinder the quality of care for this unique population.

Cover image
Title page
Copyright
Dedication
Acknowledgments
Reviewers
Contributors
Preface
Contents
PART I CONCEPTS IN PEDIATRIC PRIMARY CARE
1 The Primary Care Provider and Systems of Care
THE HEALTH OF AMERICA’S CHILDREN
CHILDREN AND YOUTH WITH SPECIAL HEALTH CARE NEEDS
INEQUALITIES IN CHILD HEALTH
PRIMARY CARE MANAGEMENT
SUMMARY
RESOURCES
REFERENCES
2 Chronic Conditions and Child Development
CHARACTERISTICS OF THE CONDITION
CHARACTERISTICS OF THE CHILD
INDIVIDUAL CHARACTERISTICS
ROLE OF FAMILY AND SOCIAL NETWORKS
DEVELOPMENTAL PERSPECTIVES OF THE BODY, ILLNESS, MEDICAL PROCEDURES, AND DEATH
PRIMARY CARE PROVIDER’S ROLE IN PROMOTING DEVELOPMENT
SUMMARY
RESOURCES
REFERENCES
3 School and the Child With a Chronic Condition
ROLE OF SCHOOL IN A CHILD’S LIFE
LAWS ON EDUCATION OF CHILDREN WITH CHRONIC CONDITIONS
ROLE OF HEALTH PROFESSIONALS IN DETERMINING SPECIAL EDUCATION SERVICES
FRAMEWORKS THAT GUIDE SCHOOL NURSING PRACTICE
ROLE OF THE SCHOOL NURSE
SUMMARY
RESOURCES
REFERENCES
4 Transitions to Adulthood
ADOLESCENT TRANSITION TO ADULTHOOD
UNDERSTANDING TRANSITION
ADOLESCENCE AND EMERGING ADULTHOOD: A UNIVERSAL TIME OF CHANGE
FACTORS MODERATING INDIVIDUAL TRANSITION
DEVELOPMENTAL STAGES AND TRANSITION PLANNING
BARRIERS TO HEALTH CARE TRANSITION
FACTORS MODERATING TRANSITION
TRANSITION PLANNING IN THE SCHOOL SYSTEM
POSTSECONDARY EDUCATION
VOCATIONAL TRAINING AND THE TRANSITION
TRANSITION FROM HOME TO COMMUNITY LIVING
COORDINATION OF TRANSITION PLANNING
RESOURCES
REFERENCES
5 Ethics and the Child With a Chronic Condition
DECISION MAKING ALONG THE COURSE OF CHRONIC CONDITIONS
THE ETHICAL DOMAIN
A MORAL FRAMEWORK FOR DECISION MAKING
ETHICS OF CARE
THE PROCESS OF DECISION MAKING
STRATEGIES FOR ETHICAL DECISION MAKING
STRATEGIES FOR DEALING WITH CONFLICT
SUMMARY
RESOURCES
REFERENCES
6 Managing Chronic Conditions via Telehealth
INTRODUCTION
OVERVIEW OF TELEHEALTH
PANDEMIC IMPLICATIONS: NEW AREAS OF CHRONIC CARE
TELEHEALTH APPLICATIONS IN PEDIATRIC CHRONIC CARE MANAGEMENT
SCHOOL-BASED TELEHEALTH FOR PEDIATRIC CHRONIC CARE MANAGEMENT
IMPLEMENTING A TELEHEALTH PROGRAM
FUTURE STATE
SUMMARY
CASE STUDY
KEY POINTS
RESOURCES FOR TELEHEALTH
REFERENCES
PART II CHRONIC CONDITIONS
7 Asthma and Allergies
ASTHMA
TESTING
DIFFERENTIAL DIAGNOSIS
ALLERGIES
PRIMARY CARE MANAGEMENT FOR ASTHMA AND ALLERGY
RESOURCES
REFERENCES
8 Anxiety Disorders and Obsessive-Compulsive Disorder
INTRODUCTION
INCIDENCE AND PREVALENCE OF ANXIETY IN CHILDREN AND ADOLESCENTS
ANXIETY DISORDERS AND OBSESSIVE-COMPULSIVE DISORDER
ASSESSMENT OF ANXIETY DISORDERS AND OBSESSIVE-COMPULSIVE DISORDER IN A CLINICAL SETTING
TREATMENT OF ANXIETY DISORDERS AND OBSESSIVE-COMPULSIVE DISORDER
CONCLUSION
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
9 Attention-Deficit/Hyperactivity Disorder
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
ADHD IN PRESCHOOL CHILDREN
ADHD IN OLDER ADOLESCENTS AND ADULTS
TREATMENT
ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
ASSOCIATED PROBLEMS OF ADHD AND TREATMENT
PSYCHOSOCIAL AND HEALTH-RELATED SEQUELAE
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
10 Autism Spectrum Disorder
INTRODUCTION
ETIOLOGY
INCIDENCE AND PREVALENCE
IDENTIFICATION AND DIAGNOSTIC ASSESSMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
COMMON MEDICAL ILLNESS MANAGEMENT
ALLIED HEALTH AND EDUCATIONAL SUPPORTS
COMPLEMENTARY AND ALTERNATIVE APPROACHES
LIFESPAN CONSIDERATIONS
RESOURCES
REFERENCES
11 Bleeding Disorders
PATHOPHYSIOLOGY
HEMOPHILIA
VON WILLEBRAND DISEASE
THE FUTURE: ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT OF BLEEDING DISORDERS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
12 Bone Marrow Transplantation
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
TREATMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
13 Cancer
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSIS AND TREATMENT OPPORTUNITIES
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
14 Celiac Disease
ETIOLOGY
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
ASSOCIATED PROBLEMS OF CELIAC DISEASE AND TREATMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
15 Cerebral Palsy
CLASSIFICATION OF CEREBRAL PALSY
SEVERITY
INCIDENCE AND PREVALENCE
ETIOLOGY AND RISK FACTORS
Diagnosis
TREATMENT
RESOURCES
REFERENCES
16 Cleft Lip and Palate*
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS AT TIMEOF DIAGNOSIS
TREATMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
17 Congenital Adrenal Hyperplasia*
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
TREATMENT
ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
ASSOCIATED PROBLEMS OF CONGENITAL ADRENAL HYPERPLASIA AND TREATMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
18 Congenital Heart Disease
ETIOLOGY
INCIDENCE AND PREVALENCE
PATHOPHYSIOLOGY
CONGENITAL HEART DISEASES
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS AT TIMEOF DIAGNOSIS
TREATMENT
ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
ASSOCIATED PROBLEMS OF CONGENITAL HEART DISEASE AND TREATMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
19 Cystic Fibrosis
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS
TREATMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
20 Diabetes Mellitus (Types 1 and 2)
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
TREATMENT
PRIMARY CARE MANAGEMENT
RESOURCES
References
21 Down Syndrome
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
TREATMENT
ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
ASSOCIATED PROBLEMS OF DOWN SYNDROME AND TREATMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
22 Eating Disorders
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
PHYSICAL HEALTH ASSESSMENT
TREATMENT
ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
ASSOCIATED PROBLEMS OF EATING DISORDERS
PROGNOSIS
PRIMARY CARE MANAGEMENT
PREVENTION
HEALTH MAINTENANCE
RESOURCE
REFERENCES
23 Epilepsy
EPIDEMIOLOGY
ETIOLOGY
DIAGNOSIS
TREATMENT
COMORBIDITIES
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
24 Fragile X Syndrome
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
TREATMENT
ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
ASSOCIATED PROBLEMS OF FRAGILE X SYNDROME AND TREATMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
READING FOR CHILDREN
REFERENCES
25 Human Immunodeficiency Virus Infections and Acquired Immunodeficiency Syndrome
EPIDEMIOLOGY
PATHOGENESIS AND TRANSMISSION
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
TREATMENT
CONDITIONS ASSOCIATED WITH HIV INFECTION
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
26 Hydrocephalus
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
TREATMENT
ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
ASSOCIATED PROBLEMS OF CONDITION AND TREATMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
27 Inflammatory Bowel Disease
ETIOLOGY
INCIDENCE AND PREVALENCE
DISEASE CLASSIFICATION AND DIAGNOSTIC CRITERIA
DIAGNOSTIC EVALUATION
CLINICAL MANIFESTATIONS
TREATMENT
IBD-ASSOCIATED PROBLEMS
PROGNOSIS AND FUTURE ADVANCES
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
28 Juvenile Idiopathic Arthritis
ETIOLOGY
CLINICAL MANIFESTATIONS
TREATMENT
ASSOCIATED PROBLEMS OF JUVENILE IDIOPATHIC ARTHRITIS AND TREATMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
ACKNOWLEDGMENT
REFERENCES
29 Kidney Disease, Chronic
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
TREATMENT
ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
ASSOCIATED PROBLEMS OF CHRONIC KIDNEY DISEASE AND TREATMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
LAB WORK.
RESOURCES
OTHER ONLINE RESOURCES
REFERENCES
30 Mood Disorders: Behavioral and Developmental Influences
DEVELOPMENTAL CONSIDERATIONS
ROLE OF APRN IN CARING FOR PEDIATRIC/ADOLESCENT/YOUNG ADULTS WITH MOOD DISORDERS
SOCIAL DETERMINANTS OF HEALTH AND PSYCHOLOGICAL FACTORS
ETIOLOGY AND PATHOPHYSIOLOGY OF DEPRESSION
INFANT-CHILD-ADOLESCENT DEVELOPMENT
DISRUPTIVE MOOD DYSREGULATION DISORDER (ICD-10 F34.81)
BIPOLAR AND RELATED DISORDERS
PRIMARY CARE MANAGEMENT
RESOURCES
INTERNET RESOURCES
REFERENCES
31 Muscular Dystrophy, Duchenne
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
TREATMENT
ASSOCIATED PROBLEMS OF DUCHENNE MUSCULAR DYSTROPHY AND TREATMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
32 Obesity
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
TERMINOLOGY AND UNCONSCIOUS BEHAVIOR
CLINICAL MANIFESTATIONS
TREATMENT
PARENTING CONSIDERATIONS
CLINICAL CHALLENGES OF WEIGHT MANAGEMENT
PRIMARY CARE MANAGEMENT
RESOURCES
CLINICIAN RESOURCES
REFERENCES
33 Organ Transplantation
SOLID ORGAN TRANSPLANTATION
PREVALENCE OF SOLID ORGAN TRANSPLANTATION
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS FOR TRANSPLANTATION CONSIDERATION
MANAGEMENT AND TREATMENT
ADVANCES IN DIAGNOSIS AND MANAGEMENT
COMPLICATIONS OF SOLID ORGAN TRANSPLANTATION AND MANAGEMENT
THE FUTURE OF PEDIATRIC TRANSPLANTATION
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
34 Phenylketonuria
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
TREATMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
35 Prematurity
INCIDENCE AND PREVALENCE
PREVENTION
ASSOCIATED CONDITIONS OF THE PRETERM INFANT
NUTRITION IN THE NICU
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
36 Sickle Cell Disease
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
TREATMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
37 Spina Bifida
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS
TREATMENT
ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
ASSOCIATED PROBLEMS OF SPINA BIFIDA AND TREATMENT
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
38 Tourette Syndrome
ETIOLOGY
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
CLINICAL MANIFESTATIONS AT TIME OF DIAGNOSIS
TREATMENT
ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
OUTCOMES FROM THE PANDEMIC
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
39 Traumatic Brain Injury
ETIOLOGY
PHYSICAL MECHANISMS OF INJURY
ABUSIVE HEAD TRAUMA
INCIDENCE AND PREVALENCE
DIAGNOSTIC CRITERIA
DIAGNOSTIC IMAGING
TREATMENT
ANTICIPATED ADVANCES IN DIAGNOSIS AND MANAGEMENT
ASSOCIATED PROBLEMS OF TRAUMATIC BRAIN INJURY
PROGNOSIS
PRIMARY CARE MANAGEMENT
RESOURCES
REFERENCES
Index

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Cheri Barber