Pediatric Rheumatology Comes of Age: Part II, An Issue of Rheumatic Disease Clinics of North America

1st Edition, Volume 48-1 - November 22, 2021
Editors: Laura E. Schanberg︎, Yukiko Kimura
Language: English
Hardback ISBN:
9 7 8 - 0 - 3 2 3 - 8 4 8 8 0 - 0
eBook ISBN:
9 7 8 - 0 - 3 2 3 - 8 4 8 8 1 - 7

In this issue of Rheumatic Disease Clinics, Guest Editors Laura E. Schanberg︎ MD and Yukiko Kimura︎ MD brings his considerable expertise to the topic of pediatric rheumatology. Top… Read more

Pediatric Rheumatology Comes of Age: Part II, An Issue of Rheumatic Disease Clinics of North America

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In this issue of Rheumatic Disease Clinics, Guest Editors Laura E. Schanberg︎ MD and Yukiko Kimura︎ MD brings his considerable expertise to the topic of pediatric rheumatology. Top experts in the field cover key topics such as CARRA, Mental health, Social media and JIA, CV disease in PRD, and more.

Cover image
Title page
Table of Contents
Copyright
Contributors
Forthcoming Issues
Foreword
Preface
Patient Engagement in Pediatric Rheumatology Research
Key points
Background
What is patient engagement?
Impact of patient engagement
History of patient engagement in pediatric rheumatology organizations
Patient engagement perspectives in pediatric rheumatology
Best practices in patient engagement
Tools required before engagement
Identifying patient partners
Recruiting, onboarding, and training
Mentoring new parents/patients
Health literacy
Pitfalls
Integrating patients in all activities
Next steps
Clinics care points
Assessing Patient-Reported Outcomes in Pediatric Rheumatic Diseases: Considerations and Future Directions
Key points
What are patient-reported outcome measures?
Patient-reported outcomes in pediatric rheumatic diseases
Consideration 1: Starting at the beginning. What matters to patients?
Consideration 2: Who is the best source for providing outcome information?
Consideration 3: What are attributes of a high-quality measure?
Consideration 4: How can patient-reported outcome measures integrate effectively into research and health care delivery settings?
State of the field
Future directions
Summary
Clinics care points
Technology to Assess and Treat Pain in Pediatric Rheumatology
Key points
Introduction
Technology to support pain assessment and communication in pediatric rheumatology
Technology to support pain management in pediatric rheumatology
Discussion
Summary
Clinics care points
Instrumental Substance Use Among Youth with Rheumatic Disease—A Biopsychosocial Model
Key points
Introduction
Brief overview of adolescent substance use epidemiology
Substance use among youth with chronic illness
Clinical Implications: Screening and Safety
Summary
Clinics care points
Mental Health in Pediatric Rheumatology: An Opportunity to Improve Outcomes
Key points
Introduction
Prevalence of mental Problems
Clinical relevance
Discussion
Summary
Clinics care points
Early Sexual Health and Reproductive Implications in Pediatric Rheumatic Diseases
Key points
Puberty
Menarche and menstrual cycles
Sexual orientation and gender identity
Human papilloma virus and gynecologic cancers
Reproductive Health Implications of Rheumatic Medications
Summary
Clinics care points
The Impact of Pediatric Rheumatic Diseases on Sexual Health, Family Planning, and Pregnancy
Key points
Introduction
Sex
Contraceptives and emergency contraception
Sexually transmitted infections
Romantic relationships and marriage
Fertility, ovarian insufficiency, and fertility preservation
Pregnancy
Summary
Clinics care points
Transitioning to Adulthood with a Rheumatic Disease: A Case-Based Approach for Rheumatology Care Teams
Key points
Introduction
Case #1: starting the transition process (age 12–16 years)
Case #2: preparing for transfer (age 17–21 years)
Case #3: setting the patient up for a successful transfer (age 18–23 years)
Case #4: integration into adult care (age 18–26 years)
Summary
Clinics care points
Cardiovascular Health in Pediatric Rheumatologic Diseases
Key points
Introduction
Defining cardiovascular health and its relevance to pediatric rheumatologic diseases
Perfect storm: interplay of disease-related risks and poor cardiovascular health in pediatric rheumatologic disease
Potential interventions and future directions
Summary
Clinics care points
Disparities in Pediatric Rheumatic Diseases
Key points
Introduction
Disparities in childhood-onset systemic lupus erythematosus
Disparities in juvenile idiopathic arthritis
Disparities in other diseases in pediatric rheumatology
Disparities in transitional care
Pediatric rheumatology workforce disparities
Interventions to eliminate health and healthcare disparities
Areas for future studies
Summary
Clinics care points
Pediatric Rheumatic Disease in Lower to Middle-Income Countries: Impact of Global Disparities, Ancestral Diversity, and the Path Forward
Key points
Introduction
Missing data: the scope of the problem
Ideal care model for pediatric rheumatology
Access to care in lower to middle-income countries
Workforce shortage
Access to research
Health disparities and ancestral diversity in pediatric rheumatic disease in lower to middle-income countries
Juvenile idiopathic arthritis
Childhood-onset systemic lupus erythematosus
Juvenile dermatomyositis
Vasculitis
Systemic sclerosis, localized scleroderma, inflammatory bone disease
Future solutions
Summary
Clinics care points
Ultrasonography in Pediatric Rheumatology
Key points
Introduction
Healthy joints
Synovitis
Tenosynovitis
Subclinical disease and implication for disease flare
Enthesitis
Procedural guidance
Education and research
Summary
Clinics care points
The Promises and Perils of Social Media for Pediatric Rheumatology
Key points
Introduction
Social media
Promises of social media
Perils of social media
Opportunities
Summary
Clinics care points
Using the Electronic Health Record to Enhance Care in Pediatric Rheumatology
Key points
Introduction
Historical context: electronic health records
Electronic health record capabilities for improving clinical practice, quality of care, and clinical research in pediatric rheumatology
Conclusions and future directions
Summary
Clinics care points
The Emerging Telehealth Landscape in Pediatric Rheumatology
Key points
Introduction
Background
Impact of health policy on telemedicine use
“Virtualizability” of pediatric rheumatology care
How to adapt telemedicine to pediatric rheumatology care
Telemedicine outcomes
Patient adaptations to telemedicine
Impact of telemedicine on pediatric rheumatology research
Impact of telemedicine on health disparities and pediatric rheumatology care
Summary
Clinics care points
Biomarkers in Childhood-Onset Systemic Lupus Erythematosus
Key points
Background
Defining a biomarker
Lupus nephritis biomarkers
Combinatorial biomarker panels for lupus nephritis
Clinical use of urinary biomarkers
Pathophysiology-based biomarkers
Complement split products
Summary
Clinics care points
Role of Environment in Pediatric Rheumatic Diseases
Key points
Introduction
Juvenile idiopathic arthritis
Childhood systemic lupus erythematosus
Juvenile dermatomyositis
Other pediatric rheumatic diseases
Discussion and summary
Clinics care points
Precision Medicine: Towards Individualized Dosing in Pediatric Rheumatology
Key points
Introduction
Precision medicine, a clinical pharmacology perspective
Examples of precision dosing for biologic drugs
Precision dosing for nonbiologic disease-modifying antirheumatic drugs
Precision medicine for optimizing therapy in pediatric rheumatology
Clinics care points
Implementation Science in Pediatric Rheumatology: A Path to Health Equity
Key points
Introduction
Implementation science: fundamental principles
Case for implementation science within pediatric rheumatology
Implementation challenges in pediatric rheumatology
Proposed framework for health equity–focused implementation science in pediatric rheumatology
Taking action: leveraging implementation science to reduce disparities in pediatric rheumatology
Summary
The Role of Pediatric Rheumatologists in Autoimmune Brain Disease
Key points
Introduction
Approach
Clinical phenotypes
Treatment
Summary
Clinics care points
Systemic Autoinflammatory Diseases: A Growing Family of Disorders of Overlapping Immune Dysfunction
Key points
Introduction
Age and inheritance of systemic autoinflammatory diseases
Mechanisms of Disease and Molecular Clinical Correlations in Systemic Autoinflammatory Diseases
Autoinflammatory diseases in the larger spectrum of human immunologic disorders
Diagnostic approach to systemic autoinflammatory disorders
The role of genetic testing
Approach to therapy
Summary
Clinics care points

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Pediatric Rheumatology Comes of Age: Part II, An Issue of Rheumatic Disease Clinics of North America

Purchase options

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Immediately download your ebook while waiting for your print delivery. No promo code needed.

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Laura E. Schanberg︎

Yukiko Kimura