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Neuroethics and Neurodevelopment
- 1st Edition, Volume 6 - August 23, 2023
- Editor: Ben Gibbard
- Language: English
- Hardback ISBN:9 7 8 - 0 - 3 2 3 - 9 9 3 9 2 - 0
- eBook ISBN:9 7 8 - 0 - 3 2 3 - 9 9 3 9 3 - 7
This volume focuses on topics at the intersection between neuroethics and neurodevelopment, and brings together the perspectives of experts in both clinical assessment and in… Read more
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Request a sales quoteThis volume focuses on topics at the intersection between neuroethics and neurodevelopment, and brings together the perspectives of experts in both clinical assessment and intervention, and researchers in child psychology, neurosciences, medicine, health policy, law, and social work. The goal is to review emerging issues related to the ethical ramifications of how variation in human neurodevelopment is described, and the effects of these descriptions on those with lived experience, clinical and intervention services, and health and social policy. Related topics are also explored including the effect of the Covid-19 pandemic, the ethics of invasive neurotechnology interventions, biomarkers, machine learning, precision medicine.
- Provides novel and original research on the emerging field of the legal regulation of neuroscience
- Takes an interdisciplinary approach, with chapters by global scholars from several disciplines, including law, philosophy and medicine
- Develops a global approach that will be useful in jurisdictions around the globe
Academics at the intersection of medicine, psychology, social work, ethics, law and policy; practitioners in pediatrics, developmental pediatrics, child psychiatry, child psychology, and social work; undergraduate, graduate and postgraduate students in neuroscience, psychology, medicine, social work and health policy
- Cover image
- Title page
- Table of Contents
- Series Page
- Copyright
- Contributors
- About the editors
- Preface
- Chapter summaries
- Description and diagnosis
- Clinical neuroscience and policy
- Acknowledgments
- References
- Introduction: Neurodevelopment in focus for neuroethics and bioethics
- Section I: Description and diagnosis
- Chapter One: The language of developmental disability
- Abstract
- 1: Labels shape categories
- 2: Labels and social categories
- 3: Beyond labels
- 4: Language and neurodevelopmental conditions
- 5: Conclusion
- Acknowledgment
- References
- Chapter Two: Attribution: A pervasive but epistemically challenging activity in the practice of developmental pediatrics
- Abstract
- 1: Introduction
- 2: Attribution scenarios in clinical developmental pediatrics
- 3: Significance and implications of attribution in developmental pediatric practice
- 4: Reducing moral distress related to attribution: Reflections aimed toward a modest set of proposals and recommendations
- 5: Conclusions
- References
- Chapter Three: First, do no harm: Cautionary reflections on the assessment and diagnosis of neurodevelopmental disorders
- Abstract
- 1: Introduction
- 2: Conceptual models for neurodevelopmental disorders
- 3: Assessment and diagnosis for neurodevelopmental disorders
- 4: Medical and ethical constructs of harm
- 5: Potential harms of assessment and diagnosis
- 6: Neuroethics and the mitigation of harm
- 7: Conclusion
- Acknowledgments
- References
- Chapter Four: Language use and identity formation in autistic persons
- Abstract
- 1: Vignettes
- 2: Description of autism
- 3: Why does language surrounding autism matter?
- 4: What does the research say regarding autism language?
- 5: Clinical terminology and identity
- 6: Language use, disability identity, and neuroethics
- 7: What should mental health professionals do?
- 8: Conclusion
- References
- Chapter Five: Disrupted life narratives of children in care with neurodevelopmental disabilities: Whose story is it?
- Abstract
- 1: Introduction
- 2: The story begins
- 3: Life course narrative
- 4: Intersection with child welfare
- 5: The official story
- 6: Changing the system
- 7: Conclusion
- References
- Further reading
- Section II: Clinical neuroscience and policy
- Chapter Six: Invasive neurotechnology for neurodevelopmental disorders
- Abstract
- 1: Introduction
- 2: The challenges of diagnosing NDDs
- 3: Indications for undergoing invasive neurotechnology for NDDs
- 4: Consent
- 5: Conclusion
- References
- Chapter Seven: Ethical considerations for biomarkers of fetal alcohol spectrum disorder and other neurodevelopmental disorders
- Abstract
- 1: Introduction
- 2: Fetal alcohol spectrum disorder (FASD)
- 3: Biomarkers of FASD
- 4: Stigmatization in FASD
- 5: Ethical ramifications of biomarker use
- 6: Conclusions and next steps
- References
- Chapter Eight: Neuroethics considerations for precision medicine and machine learning in neurodevelopmental disorders
- Abstract
- 1: What is precision medicine?
- 2: An introduction to artificial intelligence and machine learning
- 3: Precision medicine, machine learning, and neurodevelopmental disorders
- 4: Neuroethical considerations for precision medicine and machine learning in research and clinical work related to neurodevelopmental disorders
- 5: Conclusions
- References
- Chapter Nine: The impact of the COVID-19 pandemic on people with neurodevelopmental disabilities and their families
- Abstract
- 1: Chapter overview
- 2: Background on neurodevelopmental disabilities
- 3: Impact of the COVID-19 pandemic on people with neurodevelopmental disabilities and their family members
- 4: The positive impact of the pandemic for people with NDDs and their family members
- 5: Supports tailored to people with NDDs during the pandemic
- 6: Reducing the health disparities of neurodivergent youth: Neuroethics implications and next steps
- 7: Conclusion
- References
- Chapter Ten: Children with neurodisabilities and public policy: Universal design for function rather than diagnosis
- Abstract
- 1: Introduction
- 2: Background
- 3: Barriers for children with neurodisabilities to access public programs and services
- 4: Universal policy design: Design for all
- 5: Conclusion
- Acknowledgements
- References
- No. of pages: 306
- Language: English
- Edition: 1
- Volume: 6
- Published: August 23, 2023
- Imprint: Academic Press
- Hardback ISBN: 9780323993920
- eBook ISBN: 9780323993937
BG
Ben Gibbard
Dr. W. Ben Gibbard is an Associate Professor in the Department of Pediatrics at the Cumming School of Medicine, University of Calgary. He is also the Section Chief for Developmental Pediatrics at the Alberta Children’s Hospital. Research interests include topics in neuroethics and developmental pediatrics, pediatric complex care coordination, and understanding fetal alcohol spectrum disorders in the context of other cumulative adverse exposures.
Affiliations and expertise
Department of Pediatrics, Cumming School of Medicine, University of Calgary; The Alberta Children’s Hospital Research Institute and the Owerko Centre, The University of Calgary.