Contemporary Issues in Evaluating Treatment in Neurodevelopmental Disorders
- 1st Edition, Volume 62 - September 21, 2022
- Imprint: Academic Press
- Editors: Anna Esbensen, Emily Schworer
- Language: English
- Hardback ISBN:9 7 8 - 0 - 3 2 3 - 9 8 8 8 3 - 4
- eBook ISBN:9 7 8 - 0 - 3 2 3 - 9 8 8 8 4 - 1
Contemporary Issues in Evaluating Treatment in Neurodevelopmental Disorders, Volume 62 in the International Review of Research in Developmental Disabilities series, highligh… Read more
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Request a sales quoteContemporary Issues in Evaluating Treatment in Neurodevelopmental Disorders, Volume 62 in the International Review of Research in Developmental Disabilities series, highlights new advances in the field, with this new volume presenting interesting chapters on topics such as Considerations for measuring individual outcomes across contexts in Down syndrome: Implications for research and clinical trials, Remotely Monitoring Development and Treatment Outcomes in Families affected by IDD, Psychometric perspectives on developmental outcome and endpoint selection in treatment trials for genetic conditions associated with neurodevelopmental disorder, Evaluating Outcomes within Culturally Diverse Contexts for Children and Youth with Developmental Disabilities, and much more.
Other chapters in this release cover Measurement of Social Skills Treatment Outcome in Autism: Moving Beyond Informant Report and Considering Diversity, Cognitive Outcome Measures for tracking Alzheimer's Disease in Down syndrome, A Scoping Review of Psychosocial Interventions for Neurogenetic Conditions across the Lifespan, Clinical Trials and Outcome Measures: Lessons Learned from Chromosome 15 disorders, and more.
- Provides the authority and expertise of leading contributors from an international board of authors
- Presents the latest release in the International Review of Research in Developmental Disabilities series
Undergraduates, graduates, academics and researchers in the field of Research in Developmental Disabilities
- Cover image
- Title page
- Table of Contents
- Copyright
- Contributors
- Preface
- Chapter One: Psychometric perspectives on developmental outcome and endpoint selection in treatment trials for genetic conditions associated with neurodevelopmental disorder
- Abstract
- 1: Introduction
- 2: Developmental concept selection for GCAND clinical trials
- 3: Clinical outcome assessments (COA) in GCAND
- 4: Endpoint selection for developmental COAs
- 5: Discussion
- References
- Chapter Two: Remotely monitoring treatment outcomes in patients with neurogenetic syndromes: A family-centered perspective
- Abstract
- 1: What is remote assessment?
- 2: Why remote assessment?
- 3: Why not remote assessment?
- 4: Our approach to remote assessment: Centering the caregiver
- 5: Next steps and future directions
- 6: Final thoughts
- Acknowledgments
- References
- Further reading
- Chapter Three: Evaluating outcomes within culturally diverse contexts for children and youth with developmental disabilities
- Abstract
- 1: Introduction
- 2: Cultural considerations in defining and measuring outcomes for DD
- 3: Scoping review of outcome measures in intervention studies
- 4: Discussion
- 5: Conclusions
- References
- Chapter Four: Distress and challenging behavior in people with profound or severe intellectual disability and complex needs: Assessment of causes and evaluation of intervention outcomes
- Abstract
- 1: Introduction
- 2: The nine domains that influence distress and specified challenging behaviors
- 3: The relationship between domains
- 4: Conclusions
- References
- Further reading
- Chapter Five: Considerations for measuring individual outcomes across contexts in Down syndrome: Implications for research and clinical trials
- Abstract
- 1: Introduction
- 2: Challenges to measurement of individual outcomes in Down syndrome
- 3: Assessment considerations based on the phenotypic profile associated with Down syndrome
- 4: Impact of physical health on assessment of outcomes
- 5: Additional assessment considerations in Down syndrome
- 6: Summary of future directions for measuring outcomes
- Acknowledgment
- References
- Chapter Six: Cognitive outcome measures for tracking Alzheimer's disease in Down syndrome
- Abstract
- 1: Introduction
- 2: Unfolding of AD pathology and symptomology in DS
- 3: Challenges in assessing cognition and dementia in DS
- 4: Cognitive measures and AT(N) biomarkers
- 5: Measures sensitive to AD-related decline and dementia symptoms
- 6: Conclusions and next steps
- References
- Chapter Seven: Measurement of social skills treatment outcome in autism: Moving beyond informant report and considering diversity
- Abstract
- 1: Social skills intervention
- 2: Outcome measurement
- 3: Questionnaires
- 4: Observational measures
- 5: Qualitative data
- 6: Neurobiological indices
- 7: Diversity considerations in SSI outcome measurement
- 8: Discussion
- References
- Edition: 1
- Volume: 62
- Published: September 21, 2022
- No. of pages (Hardback): 326
- No. of pages (eBook): 326
- Imprint: Academic Press
- Language: English
- Hardback ISBN: 9780323988834
- eBook ISBN: 9780323988841
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Anna Esbensen
Anna J. Esbensen works at Cincinnati Children’s Hospital, Cincinnati, Ohio, USA
Affiliations and expertise
Cincinnati Children’s Hospital, Cincinnati, OH, USAES
Emily Schworer
Emily K. Schworer works at Cincinnati Children’s Hospital, Cincinnati, Ohio, USA
Affiliations and expertise
Cincinnati Children’s Hospital, Cincinnati, OH, USARead Contemporary Issues in Evaluating Treatment in Neurodevelopmental Disorders on ScienceDirect