Rare and Complex Urology
- 1st Edition - February 15, 2024
- Latest edition
- Editors: Jen Tidman, Wout Feitz
- Language: English
Rare and Complex Urology has been produced by the European Reference Network (ERN) for rare urogenital diseases and complex conditions, ERN eUROGEN.The book combines information on… Read more
Rare and Complex Urology has been produced by the European Reference Network (ERN) for rare urogenital diseases and complex conditions, ERN eUROGEN.
The book combines information on network developments and clinical and surgical aspects, allowing for better diagnoses, treatments, and patient outcomes.
The expertise areas covered include those relating to the bladder, stone and kidney diseases, congenital malformations, pelvic floor disorders, the urethra, reconstruction, and rare cancers and tumours.
This is a must-have reference for clinicians and basic scientists interested in translational urology and surgery, including urologists, paediatric surgeons, and multidisciplinary team members seeking guidance on how to implement novel research.
The book combines information on network developments and clinical and surgical aspects, allowing for better diagnoses, treatments, and patient outcomes.
The expertise areas covered include those relating to the bladder, stone and kidney diseases, congenital malformations, pelvic floor disorders, the urethra, reconstruction, and rare cancers and tumours.
This is a must-have reference for clinicians and basic scientists interested in translational urology and surgery, including urologists, paediatric surgeons, and multidisciplinary team members seeking guidance on how to implement novel research.
- Provides a foundation for many rare urogenital diseases and complex conditions with contributions from high-volume centres monitored by ERN eUROGEN
- Combines in-depth research findings with clinical information to supply state-of-the-art care solutions for rare and complex aspects of urology
- Removes the uncertainty of managing rare and complex urogenital cases and variations in practice
Clinicians and basic scientists interested in translational urology and surgery, including urologists, paediatric surgeons, and multidisciplinary team members seeking guidance on how to implement novel research
Part I: Introductory chapters
1. Introduction: Rare urology, ERN eUROGEN and knowledge exchange
Wouter F.J. Feitz
2. The European Association of Urology (EAU) and ERN eUROGEN
Christopher R. Chapple
Part II: Overview chapters
3. ERN eUROGEN: Impact and innovations for rare and complex urology
Wouter F.J. Feitz, Loes Oomen, Darren Shilhan, Michelle Battye, and Jen Tidman
4. The patient view on the ERN programme: Share, care, cure, and pathways
Dalia Aminoff, Rita Serena Bartezzati, Nicole Schwarzer, Claire Harkin, Kate Tyler, Anna De Santis, John Osborne, Kenneth Manzie, and Robert Cornes
5. Cross-ERN actions and collaborations by ERN eUROGEN
Michelle Battye, Matthew Bolz-Johnson, and Jen Tidman
6. Development of the ERN eUROGEN registry
Loes F.M. van der Zanden, Isabel C. Hageman, Lotte Boormans, Loes Oomen, and Wim P.J. Witjes
7. Development of ERN eUROGEN clinical practice guidelines (CPGs) and clinical decision support tools (CDSTs)
Jen Tidman, Wouter F.J. Feitz, Ramnath Subramaniam, Dalia Aminoff, Juan Antonio Blasco-Amaro, Beatriz Carmona-Hidalgo, Lourdes González-Bermúdez, Carmen Martín-Gómez, Elena Stallings, María Jose Vicente-Edo, and Patricia Gavín Benavent
Part III: Clinical chapters
Section A
Workstream 1: Rare congenital uro-recto-genital anomalies
8. Expertise Area 1.1: Complex genital reconstructions in patients with differences of sex development
Verena Ellerkamp, Katja P. Wolffenbuttel, and Raimund Stein
9. Expertise Area 1.2: Bladder exstrophy/epispadias
Gundela Holmdahl, Marc-David Leclair, Wolfgang H. Rösch, and Alaa El-Ghoneimi
10. Expertise Area 1.3: Rare urological stones and kidney diseases
Matthieu Peycelon, Annabel Paye-Jaouen, Delphine Demede, Valeska Bidault, Marie Andersson, and Anne-Françoise Spinoit
11. Expertise Area 1.4: Nonsyndromic urogenital tract malformation (neurogenic bladder and spina
bifida)
Giovanni Mosiello, Rien Nijman, Christian Radmayr, Michaela Dellenmark-Bloom, Sylvia Roozen, Jean Marie Jouannic, Raimund Stein, and Kate Abrahamsson
12. Expertise Area 1.5: Posterior urethral valves
Yazan F. Rawashdeh, Magdalena Fossum, Raimund Stein, and Rafal Chrzan
13. Expertise Area 1.6: Proximal hypospadias
Magdalena Fossum, Lisa Örtqvist, Yazan F. Rawashdeh, and Alessandro Morlacco
14. Expertise Area 1.7: Ano-uro-rectal malformations
Herjan J.J. van der Steeg, Paola Midrio, Eberhard Schmiedeke, and Ivo de Blaauw
Section B
Workstream 2: Functional urogenital conditions requiring highly specialised surgery
15. Expertise Area 2.1: Complicated and complex pelvic floor disorders
John Heesakkers, Michel I.A. Wyndaele, Laetitia M.O. de Kort, Emilio Sacco, Riccardo Bientinesi, Dejan Filipas, Insa Fruehling, Tim Ludwig, and Margit Fisch
16. Expertise Area 2.2: Rare diseases and conditions affecting the female urethra
José Medina-Polo, Malte W. Vetterlein, and Jakob Klemm
17. Expertise Area 2.3: Urethral reconstruction in rare diseases and conditions
Malte W. Vetterlein, Michel I.A. Wyndaele, Felix Campos-Juanatey, Jakob Klemm, Laetitia M.O. de Kort, Margit Fisch, Petra de Graaf, Tim Brits, and Gunter De Win
18. Expertise Area 2.4: Rare retroperitoneal diseases and conditions
Maria Virginia Amesty, Susana Rivas, Fabrizio Dal Moro, and Mariangela Mancini
19. Expertise Area 2.5: Bladder pain syndrome/Interstitial cystitis (BPS/IC)
Mariangela Mancini, Dick Janssen, Alessandro Morlacco, Enrico Ammirati, and Alessandro Giammo
20. Expertise Area 2.6: Adult urogenital reconstructive surgery
Laetitia M.O. de Kort, Tim Brits, Sara Brucker, Pepijn Polm, Katharina Rall, Raimund Stein, Sahra Steinmacher, Kate Tyler, and Nina Younsi
21. Expertise Area 2.7: Surgery for transgender patients
Silke Riechardt, Timo Nieder, Katharina Grupp, and Benjamin Meister
Section C
Workstream 3: Rare Urogenital Tumours
22. Expertise Area 3.1: Penile cancer
Manon T.A. Vreeburg, Peter Kirrander, Marco Falcone, Maarten Albersen, and Oscar R. Brouwer
23. Expertise Area 3.2: Testicular cancer
Arnout Alberts, Tomas Buchler, Yue Che, Ana Fröbe, Marija Miletić, and Tahlita Zuiverloon
24. Expertise Area 3.3: Adrenal cancer
Johan Langenhuijsen, Marija Miletić, Mirsala Solak, Mario Dominguez Esteban, Mariangela Mancini, Daphne Hompes, Tomislav Kulis, Jörg Fuchs, Bastian Amend, and Ana Fröbe
25. Expertise Area 3.4: Abdominopelvic sarcoma
Mariangela Mancini
26. Expertise Area 3.5: Rare renal tumour surgery
Matthieu Peycelon, Pascale Philippe-Chomette, Anne-Françoise Spinoit, and Marie Andersson
1. Introduction: Rare urology, ERN eUROGEN and knowledge exchange
Wouter F.J. Feitz
2. The European Association of Urology (EAU) and ERN eUROGEN
Christopher R. Chapple
Part II: Overview chapters
3. ERN eUROGEN: Impact and innovations for rare and complex urology
Wouter F.J. Feitz, Loes Oomen, Darren Shilhan, Michelle Battye, and Jen Tidman
4. The patient view on the ERN programme: Share, care, cure, and pathways
Dalia Aminoff, Rita Serena Bartezzati, Nicole Schwarzer, Claire Harkin, Kate Tyler, Anna De Santis, John Osborne, Kenneth Manzie, and Robert Cornes
5. Cross-ERN actions and collaborations by ERN eUROGEN
Michelle Battye, Matthew Bolz-Johnson, and Jen Tidman
6. Development of the ERN eUROGEN registry
Loes F.M. van der Zanden, Isabel C. Hageman, Lotte Boormans, Loes Oomen, and Wim P.J. Witjes
7. Development of ERN eUROGEN clinical practice guidelines (CPGs) and clinical decision support tools (CDSTs)
Jen Tidman, Wouter F.J. Feitz, Ramnath Subramaniam, Dalia Aminoff, Juan Antonio Blasco-Amaro, Beatriz Carmona-Hidalgo, Lourdes González-Bermúdez, Carmen Martín-Gómez, Elena Stallings, María Jose Vicente-Edo, and Patricia Gavín Benavent
Part III: Clinical chapters
Section A
Workstream 1: Rare congenital uro-recto-genital anomalies
8. Expertise Area 1.1: Complex genital reconstructions in patients with differences of sex development
Verena Ellerkamp, Katja P. Wolffenbuttel, and Raimund Stein
9. Expertise Area 1.2: Bladder exstrophy/epispadias
Gundela Holmdahl, Marc-David Leclair, Wolfgang H. Rösch, and Alaa El-Ghoneimi
10. Expertise Area 1.3: Rare urological stones and kidney diseases
Matthieu Peycelon, Annabel Paye-Jaouen, Delphine Demede, Valeska Bidault, Marie Andersson, and Anne-Françoise Spinoit
11. Expertise Area 1.4: Nonsyndromic urogenital tract malformation (neurogenic bladder and spina
bifida)
Giovanni Mosiello, Rien Nijman, Christian Radmayr, Michaela Dellenmark-Bloom, Sylvia Roozen, Jean Marie Jouannic, Raimund Stein, and Kate Abrahamsson
12. Expertise Area 1.5: Posterior urethral valves
Yazan F. Rawashdeh, Magdalena Fossum, Raimund Stein, and Rafal Chrzan
13. Expertise Area 1.6: Proximal hypospadias
Magdalena Fossum, Lisa Örtqvist, Yazan F. Rawashdeh, and Alessandro Morlacco
14. Expertise Area 1.7: Ano-uro-rectal malformations
Herjan J.J. van der Steeg, Paola Midrio, Eberhard Schmiedeke, and Ivo de Blaauw
Section B
Workstream 2: Functional urogenital conditions requiring highly specialised surgery
15. Expertise Area 2.1: Complicated and complex pelvic floor disorders
John Heesakkers, Michel I.A. Wyndaele, Laetitia M.O. de Kort, Emilio Sacco, Riccardo Bientinesi, Dejan Filipas, Insa Fruehling, Tim Ludwig, and Margit Fisch
16. Expertise Area 2.2: Rare diseases and conditions affecting the female urethra
José Medina-Polo, Malte W. Vetterlein, and Jakob Klemm
17. Expertise Area 2.3: Urethral reconstruction in rare diseases and conditions
Malte W. Vetterlein, Michel I.A. Wyndaele, Felix Campos-Juanatey, Jakob Klemm, Laetitia M.O. de Kort, Margit Fisch, Petra de Graaf, Tim Brits, and Gunter De Win
18. Expertise Area 2.4: Rare retroperitoneal diseases and conditions
Maria Virginia Amesty, Susana Rivas, Fabrizio Dal Moro, and Mariangela Mancini
19. Expertise Area 2.5: Bladder pain syndrome/Interstitial cystitis (BPS/IC)
Mariangela Mancini, Dick Janssen, Alessandro Morlacco, Enrico Ammirati, and Alessandro Giammo
20. Expertise Area 2.6: Adult urogenital reconstructive surgery
Laetitia M.O. de Kort, Tim Brits, Sara Brucker, Pepijn Polm, Katharina Rall, Raimund Stein, Sahra Steinmacher, Kate Tyler, and Nina Younsi
21. Expertise Area 2.7: Surgery for transgender patients
Silke Riechardt, Timo Nieder, Katharina Grupp, and Benjamin Meister
Section C
Workstream 3: Rare Urogenital Tumours
22. Expertise Area 3.1: Penile cancer
Manon T.A. Vreeburg, Peter Kirrander, Marco Falcone, Maarten Albersen, and Oscar R. Brouwer
23. Expertise Area 3.2: Testicular cancer
Arnout Alberts, Tomas Buchler, Yue Che, Ana Fröbe, Marija Miletić, and Tahlita Zuiverloon
24. Expertise Area 3.3: Adrenal cancer
Johan Langenhuijsen, Marija Miletić, Mirsala Solak, Mario Dominguez Esteban, Mariangela Mancini, Daphne Hompes, Tomislav Kulis, Jörg Fuchs, Bastian Amend, and Ana Fröbe
25. Expertise Area 3.4: Abdominopelvic sarcoma
Mariangela Mancini
26. Expertise Area 3.5: Rare renal tumour surgery
Matthieu Peycelon, Pascale Philippe-Chomette, Anne-Françoise Spinoit, and Marie Andersson
- Edition: 1
- Latest edition
- Published: February 15, 2024
- Language: English
JT
Jen Tidman
Jen Tidman is an experienced executive administrator, communications expert, and project manager with a demonstrated history of working in healthcare and publishing. She has studied at the University of Sheffield (BA Journalism Studies), Robert Gordon University (PGCert Publishing Studies), and The Open University (BSc Psychology) and has worked in the field of urology since 2004. From 2006-2015 she was the Managing Editor of the medical journal Neurourology & Urodynamics. She provided editorial support for the book “Urogenital Infections” published in 2010 by the European Association of Urology (EAU) and the International Consultation on Urological Diseases (ICUD). She worked on the initial application to form ERN eUROGEN, and following its official launch in 2017, she was appointed as the network’s Business Support Manager. Her responsibilities include project management, administration, and communication and dissemination.
Affiliations and expertise
ERN eUROGEN Business Support Manager, Department of Urology, Radboudumc Amalia Children's Hospital, Nijmegen, The NetherlandsWF
Wout Feitz
Prof. dr. W.F.J. Feitz studied Medicine in Nijmegen. He specialized in Urology (Fellow of the European Board of Urology) and specialized further in the field of Pediatric Urology (Fellow of the European Academy of Paediatric Urology). In 1993, he was appointed as Pediatric Urologist at the Department of Urology of the Radboud University Nijmegen Medical Centre. In 2001 he became associate professor and on 1 November 2006 full professor in Pediatric Urology at the Radboud University Nijmegen. The Pediatric Urology research program concerns congenital anomalies of the Urinary Tract and involves multidisciplinary collaborations within the research programs of the RUNMC and NCMLS and national and international collaborations. It involves the epidemiological and genetic aspects of congenital Urinary Tract Anomalies and Regenerative Urology and Tissue Engineering. He is currently the coordinator of the EU program EuroSTEC Soft tissue engineering for congenital birth defects (www.EuroSTEC.eu), advisor for the EU MultiTERM program (www.multitermproject.eu) and Program director of the training program for Pediatric Urology for the European Paediatric Urology Fellowship Program of The Joint Committee of Paediatric Urology (JCPU) of the EUMS, RUNMC (www.espu.org). He is the mentor of different student programs and an EUSP program for Pediatric Urology research in the field of tissue engineering.
Affiliations and expertise
Professor of Pediatric Urology, Department of Urology, Radboudumc Amalia Children's Hospital, Nijmegen, The NetherlandsRead Rare and Complex Urology on ScienceDirect