Living with Chronic Illness and Disability
Principles for nursing practice
- 4th Edition - August 21, 2021
- Authors: Esther Chang, Amanda Johnson
- Language: English
- Paperback ISBN:9 7 8 - 0 - 7 2 9 5 - 4 3 5 8 - 3
- eBook ISBN:9 7 8 - 0 - 7 2 9 5 - 8 8 2 6 - 3
- eBook ISBN:9 7 8 - 0 - 7 2 9 5 - 8 8 2 7 - 0
Living with Chronic Illness and Disability: Principles for Nursing Practice provides the knowledge and skills necessary for nursing and allied health students to provide quality,… Read more
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Request a sales quoteLiving with Chronic Illness and Disability: Principles for Nursing Practice provides the knowledge and skills necessary for nursing and allied health students to provide quality, competent care to people living with a chronic illness or disability.
The text has a strong evidence base, but is founded in reality. It includes practical, useful principles for holistic care, self-management, and a multidisciplinary approach. It also covers a range of issues affecting patients, carers and families, with a focus on empowering individuals as they adjust to the life-changing journey of chronic disease and disability.
Edited by Esther Chang and Amanda Johnson, and written by a multidisciplinary team of expert clinicians and academics, this book will enhance your confidence when caring for people with a range of major and common conditions, including heart disease, stroke, cancer, asthma, diabetes, obesity, dementia, mental illness and palliative care.
- Case studies and accompanying exercises give insights into lived experience
- Links to latest journal articles, media, further reading and online resources to enhance learning
- Questions to help you reflect on your practice
- Exercises and learning activities to understand contex
- eBook included with every print purchase
Additional resources on Evolve
- eBook on VitalSource
Student and instructor resources
- Links to multimedia resources and reflective questions to assist learning and promote self-inquiry
- Cover image
- Title page
- Table of Contents
- Copyright
- Contributors
- Reviewers
- Preface
- List of Illustrations
- List of Tables
- Section I. Frameworks for Chronic Illness and Disability
- 1. Chronic illness and disability: An overview
- Introduction
- Understanding key terms
- The global perspective of chronic disease
- Global perspective on disability
- Australian profile of disability
- New Zealand profile of disability
- Impact and challenges of chronic illness and disability
- Principles of practice
- Conclusion
- Recommended reading
- References
- 2. Partnerships in collaborative care
- Introduction
- References
- Role of the nurse
- References
- Role of the dietitian
- Nutritional anthropometric reference values
- Biochemical values
- Food composition databases
- Nutrient reference value
- Australian dietary guidelines
- Conclusion
- Recommended reading
- References
- Role of the exercise physiologist
- Accredited exercise physiologists
- Clinical role
- Where do AEPs work?
- Common conditions
- Conclusion
- Recommended reading
- References
- Note
- Role of the medical practitioner
- Conclusion
- Recommended reading
- References
- Role of the occupational therapist
- Conclusion
- References
- Role of the paramedic
- Conclusion
- References
- Role of the pharmacist
- Conclusion
- Recommended reading
- References
- Role of the physiotherapist
- Physiotherapy profession
- Physiotherapy practice
- Conditions treated
- Conclusion
- References
- Role of the social worker
- Health settings
- Psychosocial approach
- Health initiatives and practice frameworks
- Conclusion
- Recommended reading
- References
- Role of the speech pathologist
- Conclusion
- Recommended reading
- References
- 3. Models of care
- Introduction
- Models of care for people with long-term conditions
- An overview of the historical development of self-management programs
- Indigenous Australians’ health programme and chronic disease management
- Putting it all together
- Conclusion
- Recommended reading
- References
- 4. Spirituality
- Introduction
- Defining spirituality
- The role of ritual in spirituality
- Why spirituality is important to nursing
- The nurse as a spiritual being
- Spiritual care in nursing practice
- Conclusion
- Recommended reading
- References
- 5. Psychosocial care
- Introduction
- Chronic illness versus acute illness
- Lived experience versus health condition
- Psychosocial considerations
- Models
- Principles of care
- Conclusion
- Recommended reading
- References
- 6. Stigmatisation of people living with a chronic illness or disability
- Introduction
- Nurses and stigma
- Principles of nursing care when working with people living with chronic illness and/or impairment
- Conclusion
- Recommended reading
- References
- 7. Sexuality
- Introduction
- Background
- Defining the terms
- The impact of chronic illness and/or disability on sexuality and sexual health
- Implications for health practice
- Multidisciplinary approaches to addressing sexual health and wellbeing needs
- Conclusion
- Recommended reading
- References
- 8. Health disparities and people with intellectual and developmental disability
- Introduction
- Defining intellectual and developmental disability
- Prevalence of intellectual and developmental disability
- Causes of intellectual and developmental disability
- Health issues for people with intellectual and developmental disability
- Health promotion for people with intellectual and developmental disability
- Health checks for people with intellectual and developmental disability
- Role of the nurse for people with intellectual and developmental disability
- Conclusion
- Recommended reading
- References
- 9. Management of chronic pain
- Introduction
- Chronic pain defined
- Causes of chronic pain
- The economic and social impact of chronic pain
- Understanding chronic pain secondary to disability
- Towards a biopsychosocial model of chronic disability-related pain
- Cultural determinants of the experience of chronic pain
- Pain beliefs and coping strategies
- Stigma and chronic pain
- Assessment of chronic pain
- Chronic pain and co-morbidities
- Management of chronic pain – multimodal and multidisciplinary approaches
- Impact of relationships on chronic pain
- Communication and patient education
- Conclusion
- Recommended reading
- References
- 10. Rehabilitation for the individual and family
- Introduction
- Rehabilitation as a type of healthcare
- Rehabilitation is everyone’s business
- The use of goals
- Nursing and rehabilitation
- Spinal cord injury – what is it?
- Acute care – where rehabilitation begins
- Pre-transfer education
- Inpatient rehabilitation
- Brain injury – what is it?
- Life after inpatient rehabilitation
- Conclusion
- Recommended reading
- References
- 11. Impact of obesity
- Introduction
- Why is obesity a concern?
- What is obesity?
- Who are the high-risk groups for obesity?
- How is weight status measured?
- What are the strategies for achieving healthy weight?
- Screening for obesity
- Key points for nurses in managing obesity
- Very low calorie diets
- Alternatives to weight loss
- Conclusion
- References
- 12. Palliation in chronic illness
- Introduction
- The development of palliative care
- Defining palliative care
- Person-centred care
- Adopting a public health approach to palliative care
- Operationalising a population-based model of palliative care
- Preferred place of care vs preferred place of death
- End-of-life care
- Bereavement and grief
- Conclusion
- Recommended reading
- References
- Section II. Principles for Nursing Practice
- 13. Principles for nursing practice: Schizophrenia
- Introduction
- Description of the disorder
- The diagnosis of schizophrenia
- What causes schizophrenia?
- The course of schizophrenia
- Schizophrenia and chronicity
- Effect of schizophrenia on the activities of daily living
- Stigma and schizophrenia
- Image of self
- Quality of life
- Recovery
- Principles of care
- Psychosocial education
- Family and carers
- Peer support
- Implications for nursing
- Conclusion
- Recommended reading
- Reflection on recommended readings
- References
- 14. Principles for nursing practice: Depression
- Introduction
- The scope of the problem: The epidemiology of depression
- Identifying the disability impacts of depression
- Depression, the workplace and disability
- Depression and medical illness
- Clinical features of depression and assessment approaches
- Recurrence and inter-episode functioning
- Mapping the terrain: Some issues in subtyping and classifying depressive disorders
- The complex and multi-stranded causes of depression
- Approaches to the treatment and management of depression
- Combination of treatments: Pharmacotherapy and psychotherapy
- Principles of nursing care
- Conclusion
- Recommended reading
- References
- 15. Principles for nursing practice: Advanced dementia
- Introduction
- Adopting a holistic approach
- Assessing pain in people with advanced dementia
- Applying a systematic approach to the assessment of pain
- Principles of communication with family impact on the community
- Living with dementia: Perceptions of people with dementia and carers
- Assessment of family carers
- The family carer role in planning care for the person with dementia
- Conclusion
- Recommended reading
- References
- 16. Principles for nursing practice: Stroke
- Introduction
- Stroke
- Risk factors and primary prevention
- Nurse-led clinics for stroke
- Pre-hospital care
- Diagnosis
- Types of stroke
- Acute stroke care
- Prevention of secondary complications
- Haemorrhagic stroke care
- Impact of stroke
- Rehabilitation
- Patient and caregiver education
- Conclusion
- Recommended resources
- References
- 17. Principles for nursing practice: Parkinson’s disease, multiple sclerosis and motor neurone disease
- Introduction
- Parkinson’s disease
- Multiple sclerosis
- Motor neurone disease
- Education for the person and family living with PD, MS or MND
- Conclusion
- Recommended reading
- References
- 18. Principles for nursing practice: Persistent asthma
- Introduction
- Behaviours that contribute to the development of the condition
- The impact of persistent asthma on the quality of life
- Control-based management of asthma
- Family and carers
- Conclusion
- Recommended reading
- References
- 19. Principles for nursing practice: Chronic obstructive pulmonary disease
- Introduction – what is COPD?
- How is COPD related to asthma and other lung function diseases?
- Burden of disease: COPD
- Epidemiology of COPD
- Effects of COPD on physical health
- Pathophysiology of breathlessness
- Effects of COPD on mental health and quality of life
- Management of COPD
- Nursing principles and interventions
- Principles of nursing practice
- Conclusion
- Recommended reading
- References
- 20. Principles for nursing practice: Coronary heart disease
- Introduction
- CHD risk factors and behaviours that contribute to the development of CHD
- Absolute risk assessment
- Cardiac rehabilitation
- Case study reflection
- Patient education: Understanding the disease
- Case study reflection
- Case study reflection
- Case study reflection
- Case study reflection
- Case study reflection
- Case study reflection
- Case study reflection
- Case study reflection
- Case study reflection
- Case study reflection
- Social isolation and lack of social support
- Māori and pacific islander people
- Conclusion
- Case study reflection
- Recommended reading
- References
- 21. Principles for nursing practice: Chronic heart failure
- Introduction
- Definition of chronic heart failure
- Causes of chronic heart failure
- Deleterious compensatory mechanisms in chronic heart failure
- Signs and symptoms of chronic heart failure
- Diagnosis of chronic heart failure
- Management of chronic heart failure
- Team management approach to chronic heart failure management
- Managing acute decompensated heart failure
- Strategies to manage chronic heart failure on a daily basis across the disease continuum
- Evidence-based treatment gap
- Palliative and supportive strategies in chronic heart failure
- Conclusion
- Recommended reading
- References
- 22. Principles for nursing practice: Chronic kidney disease
- Introduction
- Understanding CKD
- CKD and accelerated cardiovascular disease
- Screening for CKD
- Delaying progression
- Preventing complications
- Treating complications
- The person with end-stage kidney disease
- Symptom burden of CKD
- Psychosocial burden of CKD
- Body image
- Supporting effective self-management in CKD
- Family and carers
- Conclusion
- Recommended reading
- References
- 23. Principles for nursing practice: Chronic diseases of the bowel
- Introduction
- Incidence/prevalence: Nursing impact
- Inflammatory bowel disease: Two distinctive disorders
- Chronic diseases of the bowel: Nursing implications
- Conclusion
- Recommended reading
- Recommended websites
- Self-help and support groups
- References
- 24. Principles for nursing practice: Keratinocyte cancers and melanoma
- Introduction
- Behaviours that contribute to the development of skin cancer
- Keratinocyte cancer
- Presentation and diagnosis of keratinocyte cancers
- Melanoma
- Marjolin’s ulcer
- Wound management
- Alterations in body image
- Education for the person, family and community
- Conclusion
- Recommended reading
- References
- 25. Principles for nursing practice: Osteoarthritis and osteoporosis
- Introduction
- Osteoarthritis
- Rheumatoid arthritis
- Osteoporosis
- Conclusion
- Recommended reading
- References
- 26. Principles for nursing practice: Diabetes
- Introduction
- Type 1, type 2 and gestational diabetes
- Common symptoms and management goals
- Diagnostic criteria
- Managing diabetes
- Diabetes complications
- Self-management
- Conclusion
- Recommended reading
- Useful websites
- References
- 27. Principles for nursing practice: HIV/AIDS
- Introduction
- Background
- Statistics, transmission and prevention
- Progression and treatment
- Interventions
- Conclusion
- Recommended reading
- References
- 28. Principles for nursing practice: Cancer
- Introduction
- Reducing risk and detecting cancer early
- Ensuring best possible treatment and support during and after active treatment
- Nursing responses to key QOL concerns for people affected by cancer
- Conclusion
- Recommended reading
- References
- Index
- No. of pages: 600
- Language: English
- Edition: 4
- Published: August 21, 2021
- Imprint: Elsevier
- Paperback ISBN: 9780729543583
- eBook ISBN: 9780729588263
- eBook ISBN: 9780729588270
EC
Esther Chang
Affiliations and expertise
Emeritus Professor, School of Nursing and Midwifery, Western Sydney University, Sydney, NSW, AustraliaAJ
Amanda Johnson
Affiliations and expertise
Head of School, School of Nursing, Midwifery and Paramedicine NSW/ACT, Australian Catholic University; Adjunct Associate Professor , Western Sydney University, NSW.