Intellectually Impaired People
The Ongoing Battle
- 1st Edition - March 9, 2023
- Imprint: Academic Press
- Author: Klaus Rose
- Language: English
- Paperback ISBN:9 7 8 - 0 - 4 4 3 - 1 8 8 1 3 - 8
- eBook ISBN:9 7 8 - 0 - 4 4 3 - 1 8 8 1 2 - 1
Intellectually Impaired People: The Ongoing Battle addresses challenges against the background of history, changing societal environments, and current intellectual approache… Read more
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Request a sales quoteIntellectually Impaired People: The Ongoing Battle addresses challenges against the background of history, changing societal environments, and current intellectual approaches and attitudes toward persons with disabilities. The book discusses national and international conventions, societal attitudes, sheltered workshops, the right of intellectually impaired persons for self-responsibility and its limitations, and the place of mentally impaired persons in the public image. Additionally, the book attempts to capture the forces that drive the changes of our conceptual frameworks.
The US Tuskegee study which withheld antibiotics from black men with syphilis was not ended by scientific criticism but by a courageous man, press reports, and a changed social perception. The non-hiding of handicapped children is not the result of government orders, there are many non-resolvable dilemmas and tension between supporting, understanding, and patronizing a complex situation with many potential future avenues.
- Recognizes how contradictory feelings and attitudes toward impaired persons have a complex historical background
- Sheds light on society and our institutions that deal with disabled people and the limitations of an isolated medical approach
- Covers national and international conventions of mentally impaired persons
Researchers and students in public health, medicine, social sciences, anthropology, political science, economy, disability studies, history, pediatrics, law, international relations, theology, Members of Institutional Review Boards (IRBs)/ Ethics Committees (ECs), politicians
- Cover image
- Title page
- Table of Contents
- Copyright
- Preface
- Chapter 1: Introduction
- Abstract
- References
- Chapter 2: Concepts of intellectual impairment from antiquity to early modern times
- Abstract
- 1: Introduction
- 2: From hunters and gatherers to communities that believed in one god
- 3: Charities, hospitals, and the emergence of the modern state
- 4: Reformation
- 5: Dissolution in England
- References
- Chapter 3: Separation
- Abstract
- References
- Chapter 4: The place of medicine in society
- Abstract
- 1: Introduction
- References
- Chapter 5: Moral treatment
- Abstract
- References
- Chapter 6: Eugenics
- Abstract
- References
- Chapter 7: Down syndrome
- Abstract
- 1: Introduction
- 2: Features of Down syndrome
- 3: John Langdon Down
- 4: Trisomy 21
- 5: Down syndrome in the 20th century
- 6: Prenatal screening and the abortion debate
- 7: Withholding of lifesaving treatment
- 8: Conclusions
- 9: The future of Down syndrome
- References
- Chapter 8: Nazi mass murder
- Abstract
- References
- Chapter 9: Neurodevelopment disorders
- Abstract
- 1: Introduction
- 2: Autism and autism spectrum disorder (ASD)
- 3: Communication disorders
- 4: Asperger syndrome
- 5: Attention deficit hyperactivity disorder (ADHD)
- 6: Conclusions
- References
- Chapter 10: Rett syndrome & more
- Abstract
- 1: Introduction
- 2: Rett syndrome
- 3: Fetal alcohol spectrum disorder (FASD)
- 4: Fragile X syndrome
- 5: Conclusions
- References
- Chapter 11: Industrialization, schooling, intelligence quotient (IQ)
- Abstract
- References
- Chapter 12: Historical emergence of medicine and psychiatry
- Abstract
- References
- Chapter 13: The first revolution
- Abstract
- 1: Classification of intellectual impairment and mental illness in the United Kingdom in the 19th century
- 2: Organizations and charities for mentally challenged people
- 3: Judy Fryd and the Association of Parents of Backward Children (APBC)
- 4: Parents’ and relatives’ organization in the United States
- 5: Conclusions
- References
- Chapter 14: The second revolution
- Abstract
- 1: Introduction: Disability as a personal issue
- 2: The spirit of charity
- 3: Transition to citizens’ demands for full rights
- 4: The special challenge of intellectually impaired people
- 5: Conclusions
- References
- Chapter 15: US, UK, and EU laws
- Abstract
- 1: Introduction
- 2: The Americans with Disabilities Act of 1990 (ADA)
- 3: UK Disability Discrimination Act 1995 (DDA)
- 4: UK Equality Act 2010
- 5: European Union (EU) Equal Treatment Directives
- References
- Chapter 16: The United Nations (UN) Convention on the Rights of Persons with Disabilities (CRPD), European Union (EU) laws, and more
- Abstract
- 1: Introduction
- 2: The UN Universal Declaration of Human Rights
- 3: The UN Convention on the Rights of Persons with Disabilities
- 4: UN Declaration on the Rights of Mentally Retarded Persons
- 5: European Union (EU)
- 6: Conclusion
- References
- Chapter 17: The paralympics and more
- Abstract
- 1: Introduction
- 2: The emergence of the Paralympic Games (Paralympics) and parasports
- 3: Sports competition for mentally impaired people
- 4: Operational challenges in sports for mentally impaired athletes
- 5: Preliminary assessment of sports for mentally impaired athletes
- References
- Chapter 18: Inclusion
- Abstract
- 1: Introduction: The concept of inclusion
- 2: Inclusion in education
- 3: Inclusion in education of people with intellectual impairment
- 4: EU Union of Equality 2021
- 5: Assessment and conclusions
- References
- Chapter 19: Jobs for the disabled
- Abstract
- 1: Introduction
- 2: Sheltered workshops and more
- 3: UN CRPD, other high aims, and the real world
- 4: Qualification
- 5: Assessment
- 6: The future
- References
- Chapter 20: Handicapped people in society
- Abstract
- 1: Introduction
- 2: Books
- 3: Movies
- 4: TV
- 5: Social media
- 6: YouTube
- 7: Assessment and conclusion
- References
- Chapter 21: Fashion models
- Abstract
- 1: Introduction
- 2: Examples for successful fashion models with a disability
- 3: Discussion
- References
- Chapter 22: Competition, social care, and hypocrisy
- Abstract
- 1: Introduction
- 2: Free market economics, socialism, and a necessary balance
- 3: The economic impact of the Americans with Disability Act (ADA)
- 4: The harsh reality
- References
- Chapter 23: Reasonable philanthropy
- Abstract
- 1: Introduction
- 2: Academic research
- 3: Charity and philanthropy
- 4: Venture philanthropy
- 5: Venture philanthropy for intellectually impaired people?
- References
- Chapter 24: The needy are here
- Abstract
- 1: Introduction
- 2: The inner challenges of charity
- 3: Social recognition of disabled care
- 4: European expansion and internal changes
- 5: The way forward
- References
- Chapter 25: Self-interest of institutions
- Abstract
- 1: Introduction
- 2: The catch
- 3: Relenting FDA, stubborn EMA
- 4: Why are there no pediatric animal studies?
- 5: A new type of conflict of interests
- 6: Ongoing research and drug development
- References
- Chapter 26: Entrust your child to an institution?
- Abstract
- References
- Chapter 27: Outlook
- Abstract
- References
- Index
- Edition: 1
- Published: March 9, 2023
- Imprint: Academic Press
- No. of pages: 282
- Language: English
- Paperback ISBN: 9780443188138
- eBook ISBN: 9780443188121
KR
Klaus Rose
Dr. Klaus Rose is a medical doctor by training and profession. In the 1990s, after clinical training, he joined the pharmaceutical industry. In 1999 at Novartis in Switzerland, he came across clinical studies in children and was intrigued. His eldest daughter suffered from Sturge–Weber syndrome, which is serious and very rare. Dr. Rose became passionate about “pediatric drug development” and what the European Medicines Agency (EMA) called “Better Medicines for Children.” He became global head pediatrics at Novartis from 2001–2005 and moved to the same position 2005–2009 at Genentech/Roche. After one more year at a regulatory company, he became an independent consultant in 2011. He advises companies on EMA “pediatric investigation plans” (PIPs), and Food and Drug Administration (FDA) pediatric requests or demands. He detected fundamental flaws in “Pediatric Drug Development“ and publishes about this (and more) in peer-reviewed journals and medical textbooks.
Affiliations and expertise
Klausrose Consulting, Pediatric Drug Development and More; Riehen (Basel), SwitzerlandRead Intellectually Impaired People on ScienceDirect