Intellectual Disabilities

Toward Inclusion

7th Edition - July 31, 2021
Editors: Helen Atherton, Debbie Crickmore
Language: English
Paperback ISBN:
9 7 8 - 0 - 7 0 2 0 - 8 1 5 0 - 7

This leading textbook (previously known as Learning Disabilities) aims to further the practice of professionals and agencies who support people with intellectual disabilit… Read more

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This leading textbook (previously known as Learning Disabilities) aims to further the practice of professionals and agencies who support people with intellectual disabilities. It emphasizes the strengths rather than deficits of people with intellectual disabilities, highlights the crucial role of family and friends, and places individuals firmly at the heart of everything that impacts them.

Intellectual Disabilities: Toward Inclusion
centres on the concepts of respecting the personhood of people with intellectual disabilities, and their rights to holistic health and to live their best lives. Most of the 27 chapters are co-authored by respected international authors, and the content has been fully updated to reflect contemporary policy, legislation and service configuration.

This unique text will challenge and reframe typically held views, and provides an international focus that recognizes we have much to learn from the experiences and perspectives of other nations around the world.

Cover image
Title page
Table of Contents
Copyright
Contributors
Dedication
Foreword
Preface
Section 1. Who am I?
Section 1
Who am I?
1. Understanding personhood
Introduction
Origins of personhood
Personhood comes under threat
Disability models in society
Personhood, rights and justice
Conclusion
2. The importance of the personal narrative in the lives of people with intellectual disabilities
Introduction
What is the personal narrative?
What is Person-Centred Practice?
Cornerstones of Person-Centred Practice
How can the personal narrative facilitate person-centred approaches?
Working within an ethical framework
Conclusion
3. How can you help me have a choice?
Introduction
Limits on choice
Citizenship: the purpose that guides social invention
Developing a culture of power-with rather than power-over
Self-directed supports
Conclusion
4. What’s important to me? Using collaborative and creative approaches to shift the power in assessment
Introduction
What is assessment?
Assessment across the life course
Communication and assessment
Getting creative: responsive and collaborative approaches
Conclusion
5. Inclusive communication
Introduction
What is communication?
Challenges in Everyday Communication
Addressing Communication Difficulties
Inclusive communication
Conclusion
6. ’They won’t let me go cycling by myself’: challenges of risk taking
Introduction
What is risk and risk taking?
Three illustrations
Facilitating risk taking: advocacy, trust and communication
Conclusion
7. Self-advocacy and advocacy
Introduction
History of self-advocacy
Self-advocacy and other types of advocacy
Substitute and supported decision making
Conclusion
8. Safeguarding against abuse and harm
Introduction
Background and historical overview
Definitions and categories of abuse
Settings of abuse
Perpetrators of abuse
The impact of abuse
Why are people with intellectual disabilities abused?
Responding to abuse and harm
Safeguarding – toward inclusion
Conclusion
Section 2. Maximising my health
Section 2
Maximising my health
9. Understanding health
Introduction
Understanding the concept of health
Health challenges
Key determinants of health
Advocate, Enable, and Mediate
Ecological Framework to Optimise Health Outcomes
Multisectoral Stakeholders
Conclusion
10. Enabling good health
Introduction
Principles underpinning health care interventions
Domains of intervention for improving health care delivery
Setting health goals: a health action plan
Conclusion
11. Physical health
Introduction
Physical disabilities: An overview
Disorders of movement
Pain assessment and management
Nutrition and hydration
Disorders of eating and swallowing
Oral health
Bladder and bowel function
Skin integrity
Postural care
Constipation
Conclusion
12. Empowerment through skill development
Introduction
Skills teaching
Activities of Daily Living
Personal care needs
Dressing
Eating and drinking
Promoting continence
Mobility
Conclusion
13. Expanding sensory awareness
Introduction
Five basic sensory systems
Three further sensory systems
Putting it all together
Conclusion
14. Epilepsy
Introduction
What is epilepsy?
Definition and classification
Prognosis
Treatment
Living (well) with epilepsy
Genetics in diagnosis
Conclusion
15. Autism spectrum conditions
Introduction
What characterises autism?
Our use of labels
Developmental change
Psychological characteristics
Concurrent conditions
Life with autism
How is autism identified?
What causes Autism?
Prevalence of autism
Interventions
Specific interventions
Conclusion
16. Mental health in people with intellectual disabilities
Introduction
What do we mean by the term ‘mental health problems’?
Using a bio-psycho-social model to understand mental health
Recognising the signs/symptoms of mental ill health
Assessing mental health problems
Conclusion
17. Understanding and responding to behaviour
Introduction
Definitions and associated issues
Prevalence and demography
Causation
Principles of assessment of challenging behaviour
Interventions
Working within an ethical and legal framework
Conclusion
18. Working with people with intellectual disabilities suspected of offending
Introduction
Prevalence of intellectual disability in criminal justice services
The legal and policy framework
Difficulties faced by people with intellectual disabilities in the Criminal Justice System
Pathway through the criminal justice system
Conclusion
Section 3. Living my best life
Section 3
Living my best life
19. Working with families
Introduction
What Is A Family Caregiver?
The Impact Of Caregiving
Working Effectively With Families
Developing Professional Relationships
Valuing The Expert
Understanding Changing Needs
Conclusion
20. Childhood
Introduction
Children first
Early identification and diagnosis
Family experience
Transition through childhood
Keeping children safe
Conclusion
21. Leisure and friendships
Introduction
The social status of people with intellectual disabilities
Promoting social inclusion through leisure
Definitions of leisure
Role of services and support staff
Creating active and social lifestyles
Opportunities and risks
Conclusion
22. Access to education
Introduction
Where should children and young people be taught?
What should be taught?
Profound and Multiple Intellectual Disabilities (PMID)
Transitions and preparing for adulthood
Recording and assessment of progress
Working with others
Conclusion
23. Realising employment: Unfulfilled aspirations?
Introduction
What is ‘employment’?
Brief policy context
Key concepts
Why real jobs are important
Supported employment model
Barriers to employment
Realities of practice
Principles for best practice
Conclusion
24. A home of my own
Introduction
What does ‘Home’ mean for you?
Rights and the idea of Home
From Institutions to Community Living
Being at home in the community
Independent Living
Other key ingredients
Conclusion
25. Sexuality and relationships
Introduction
What influences sexual wellbeing?
Sexual rights and consent
LGBTQIA experiences
Gender-based violence and abuse
Good practice
Conclusion
26. Growing older
Introduction
The ageing process
Physical health
Mental health and dementia
Facilitating healthy ageing
Retirement
Different service models to support older people with intellectual disabilities
The role of professionals in identifying and meeting needs
Looking to the future
Conclusion
27. End of life: holistic approaches to loss, dying & death
Introduction
Death as loss
End-of-life care
Living with loss
Bereavement and people with intellectual disabilities
Conclusion and recommendations
Index

Life sciences

Physical sciences & Engineering

Social sciences & Humanities

Health