Health Information Exchange

Navigating and Managing a Network of Health Information Systems

2nd Edition - November 9, 2022
Editor: Brian Dixon
Language: English
Paperback ISBN:
9 7 8 - 0 - 3 2 3 - 9 0 8 0 2 - 3
eBook ISBN:
9 7 8 - 0 - 3 2 3 - 9 0 8 0 3 - 0

Health Information Exchange: Navigating and Managing a Network of Health Information Systems, Second Edition, now fully updated, is a practical guide on how to understan… Read more

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Health Information Exchange: Navigating and Managing a Network of Health Information Systems, Second Edition, now fully updated, is a practical guide on how to understand, manage and make use of a health information exchange infrastructure, which moves patient-centered information within the health care system. The book informs and guides the development of new infrastructures as well as the management of existing and expanding infrastructures across the globe. Sections explore the reasons for the health information exchange (HIE) infrastructures, how to manage them, examines the key drivers of HIE, and barriers to their widespread use.

In addition, the book explains the underlying technologies and methods for conducting HIE across communities as well as nations. Finally, the book explains the principles of governing an organization that chiefly moves protected health information around. The text unravels the complexities of HIE and provides guidance for those who need to access HIE data and support operations.

Cover image
Title page
Table of Contents
Copyright
List of contributors
Foreword
Preface
Acknowledgments
Section 1: Health information exchange fundamentals
Chapter 1. Introduction to health information exchange
Abstract
1.1 Introduction
1.2 Health information exchange
1.3 Evolution of health information exchange in the United States
1.4 HIE outside the United States
1.5 Purpose and structure of this book
1.6 Summary
Questions for discussion
References
Chapter 2. Health information exchange as a profession
Abstract
2.1 Introduction
2.2 Human resource needs—digital health information professionals
2.3 Digital health information professionals—supply and demand
2.4 Skills and training of digital health professionals
2.5 Defining and executing a future strategy for health informaticians and health information exchange professionals
2.6 Emerging trends
2.7 Summary
Questions for discussion
References
Chapter 3. Policies and incentives for adoption: toward broader use
Abstract
3.1 Introduction
3.2 Landscape of the health information exchange marketplace
3.3 Emerging trends
3.4 Summary
Questions for discussion
References
Section 2: Organizational aspects of managing health information exchange
Chapter 4. Engaging and sustaining stakeholders: toward governance
Abstract
4.1 Introduction
4.2 Governing bodies
4.3 Policies and procedures
4.4 Data sharing “Trust” agreements
4.5 Governance key success factors
4.6 Governance challenges
4.7 Enterprise exchange challenges
4.8 Regional exchange challenges
4.9 State health information organization challenges
4.10 Nationwide exchange challenges
4.11 Community-based health information exchange network governance example: Indiana Network for Patient Care
4.12 Government-facilitated health information exchange network example: Virginia Health Information
4.13 National health information exchange network governance example: eHealth Exchange
4.14 Emerging trends
4.15 Summary
Questions for discussion
Acknowledgments
References
Chapter 5. Managing the business of health information exchange: moving towards sustainability
Abstract
5.1 Introduction
5.2 Sustainability for the various forms of health information exchange is different
5.3 Business 101 for Health Information Organizations
5.4 Hypothetical case study to illustrate sustainability
5.5 Increasing health information exchange revenue
5.6 Increasing the gross margin per service
5.7 Reducing overhead costs of an health information exchange business
5.8 Planning for sustainability
5.9 Challenges to sustainability
5.10 Health data utilities, an emerging model for health information exchange networks
5.11 Summary
Questions for discussion
Acknowledgments
References
Chapter 6. Managing privacy, confidentiality, and risk: towards trust
Abstract
6.1 Introduction
6.2 Federal and state laws pertaining to health information exchange
6.3 Information blocking regulations
6.4 Contracts
6.5 Summary
Questions for discussion
Acknowledgments
References
Chapter 7. Managing threats to health data and information: toward security
Abstract
7.1 Introduction
7.2 Health Information Technology for Economic and Clinical Health Act
7.3 Breach Notification Rule
7.4 21st Century Cures Act Final Rule
7.5 NIST Cybersecurity Framework 1.1
7.6 Technical risk management analysis methods
7.7 Risk assessments, risk management plans, and risk registers in the healthcare management process for Health Information Exchanges
7.8 Emerging trends
7.9 Summary
Questions for discussion
References
Section 3: Technical architecture and building blocks
Chapter 8. Architectures and approaches to manage the evolving health information infrastructure
Abstract
8.1 Introduction
8.2 The health information infrastructure
8.3 Supporting the health information infrastructure
8.4 Open HIE—a model health information infrastructure
8.5 Benefits of the OpenHIE interoperability layer
8.6 Emerging trends
8.7 Summary
Questions for discussion
Acknowledgments
References
Chapter 9. Syntactic interoperability and the role of syntactic standards in health information exchange
Abstract
9.1 Introduction
9.2 Defining syntactic interoperability: definition and need
9.3 Common syntactic standards relevant for health information exchange
9.4 How standards are developed for health care
9.5 How syntactic standards are used and supported in the real world
9.6 Emerging trends
9.7 Summary
Questions for discussion
Acknowledgments
References
Chapter 10. Standardizing health care data across an enterprise
Abstract
10.1 Introduction
10.2 Role of terminologies in health care
10.3 Standard terminologies in health care
10.4 Selection of standard terminologies for health information exchange
10.5 Current use of standard terminologies
10.6 Mapping
10.7 Terminology Services
10.8 Emerging trends
10.9 Summary
Questions for discussion
Acknowledgments
References
Chapter 11. Shared longitudinal health records for clinical and population health
Abstract
11.1 Introduction
11.2 Shared longitudinal records for clinical health
11.3 Shared longitudinal records for population health
11.4 Implementation
11.5 Emerging trends
11.6 Summary
Questions for discussion
References
Chapter 12. Client registries: identifying and linking patients
Abstract
12.1 Introduction
12.2 Patient identifiers
12.3 Unique patient identifiers
12.4 Client registries
12.5 The Enterprise Master Patient Index
12.6 Data quality
12.7 Metadata and standards
12.8 Algorithmic matching
12.9 Emerging trends
12.10 Summary
Questions for discussion
References
Chapter 13. Facility registries: metadata for where care is delivered
Abstract
13.1 Introduction
13.2 Facility registry background
13.3 Implementation of a health facility registry
13.4 The value of facility registries
13.5 Components of a facility registry
13.6 Facility registry functionality
13.7 Data specification
13.8 Creating unique identifiers
13.9 Data sources for constructing the master facility list
13.10 An example from the US social security administration
13.11 Mapping disparate facility data
13.12 Emerging trends
13.13 Summary
Questions for discussion
Acknowledgments
References
Chapter 14. Health worker registries: managing the health care workforce
Abstract
14.1 Introduction
14.2 Need for coordinated health care worker data
14.3 Health worker registries
14.4 Health worker registries within a health information exchange
14.5 Existing minimum data sets
14.6 Creation of minimum data sets
14.7 Standards to support the minimum data set
14.8 Emerging trends
14.9 Summary
Questions for discussion
Acknowledgment
References
Chapter 15. Healthcare finance data exchange: toward universal health coverage
Abstract
15.1 Introduction
15.2 Role of claims in health information exchange to achieve universal health coverage
15.3 Claims processing in the United States and Europe
15.4 Claims processing systems in Low-and-Middle Income Countries
15.5 OpenHIE and claims processing
15.6 Summary
Questions for discussion
Acknowledgments
References
Section 4: Impacting health care delivery and outcomes
Chapter 16. Evidence base for health information exchange
Abstract
16.1 Introduction
16.2 Methods
16.3 Evidence base for the effect of Health Information Exchange on health outcomes
16.4 Conclusion
Questions for discussion
Acknowledgments
References
Chapter 17. Measuring the value of health information exchange
Abstract
17.1 Introduction
17.2 The spectrum of evaluation
17.3 Developing an evaluation plan
17.4 Dissemination of findings
17.5 Emerging trends
17.6 Summary
Questions for discussion
References
Chapter 18. Leveraging HIE to facilitate large-scale data analytics
Abstract
18.1 Introduction
18.2 Foundations for analytics
18.3 Analytical maturity
18.4 Analytical approaches
18.5 Drivers of analytics in health systems
18.6 How does analytics support promoting interoperability and reporting goals?
18.7 How can HIOs provide real-time analytics to meet population health goals?
18.8 Barriers to analytics
18.9 Impact of HIE architecture models on analytics
18.10 Emerging trends
18.11 Summary
Questions for discussion
Acknowledgments
References
Chapter 19. Health information exchange: incorporating social and environmental determinants of health into health information exchange
Abstract
19.1 Introduction
19.2 Section 1. Defining social determinants of health
19.3 Section 2. The role of health information exchange in social determinants of health
19.4 Section 3. Incorporation of social determinants of health into health information exchange
19.5 Emerging trends
19.6 Summary
Questions for discussion
References
Chapter 20. Cross-border Health Information Exchange to Achieve World Health Outcomes
Abstract
20.1 Introduction
20.2 Cross-border Health Information Exchange
20.3 Summary
Questions for Discussion
Acknowledgements
References
Chapter 21. Future directions for health information exchange
Abstract
21.1 Introduction
21.2 A unified approach to nationwide exchange
21.3 An emerging challenge: usability of interoperability
21.4 International policies impacting health information exchange
21.5 Models of health information exchange postpandemic
21.6 Conclusion
Questions for discussion
References
Section 5: Case studies in health information exchange
Chapter 22. The Indiana Health Information Exchange
Abstract
Major themes
22.1 Introduction
22.2 Context
22.3 The Indiana Health Information Exchange
22.4 Summary
Questions for discussion
References
Chapter 23. Using health information exchange to support public health activities in Western New York: a case study
Abstract
23.1 Introduction
23.2 Background and context
23.3 Health information exchange and public health
23.4 Intervention, planning, and assessment
23.5 Summary
Lessons learned
Questions for discussion
Acknowledgments
References
Chapter 24. Creating a 21st century health information technology infrastructure: New York’s Health Care Efficiency and Affordability Law for New Yorkers Capital Grant Program
Abstract
Major themes
24.1 Introduction
24.2 Background: the Health Care Efficiency and Affordability Law for New Yorkers Capital Grant Program
24.3 Case study: the evolution of health information exchange organizations in New York State
24.4 HEAL NY Phase 1 (2005–08)
24.5 HEAL NY Phase 5 (2007–10)
24.6 HEAL NY Phases 10, 17, and 22 (2009–14)
24.7 New York State’s evolution during the period of federal action: HITECH Act and Meaningful Use Stages 1 & 2 (2008–14)
24.8 The current state of health information exchange in New York State
24.9 Summary
Questions for discussion
Acknowledgments
References
Chapter 25. Use of Health Information Exchanges for value-based care delivery and population health management: a case study of Maryland’s Health Information Exchange
Abstract
25.1 Introduction
25.2 Value-based care and Accountable Care Organizations
25.3 Role of Maryland’s Health Information Exchange in value-based care
25.4 Conclusion/summary
Questions for discussion
References
Chapter 26. Health information exchange—the value proposition: a case study of the US Social Security Administration
Abstract
26.1 Introduction
26.2 Theoretical models for examining the value of health information exchange
26.3 Background and context
26.4 Case study
26.5 Summary
Questions for discussion
Acknowledgments
References
Chapter 27. Health information exchange–enhanced care coordination: implementation and evaluation of event notification services in the Veterans Health Administration
Abstract
Major themes
27.1 Introduction
27.2 Background
27.3 Event notification
27.4 Context
27.5 Implementing event notification services in the Veterans Health Administration
27.6 Experiences and lessons learned
27.7 Future directions for event notification services
27.8 Summary
Questions for discussion
Acknowledgments
References
Chapter 28. Facilitating HIE in Denmark: the story of MedCom, a Danish health information organization
Abstract
Major themes
28.1 Introduction
28.2 Background
28.3 Health information exchange in Denmark
28.4 HIE adoption and use
28.5 Keys to success for Denmark
28.6 Challenges and barriers to HIE and data use
28.7 Future directions
28.8 Summary
Questions for discussion
Acknowledgments
References
Chapter 29. Addressing data needs for national HIV programs using HIE: case studies from Ethiopia and Nigeria
Abstract
Major themes
29.1 Introduction
29.2 Background
29.3 Case studies
29.4 Summary
Discussion questions
Acknowledgments
Disclaimer
References
Chapter 30. Health information exchange in Taiwan: multiple layers to facilitate broad access and use of data for clinical and population health
Abstract
Major themes
30.1 Introduction
30.2 Background on Taiwan’s national health insurance system
30.3 Health information exchange to support the NHI
30.4 Security and privacy across the NHI system
30.5 Comparison of the NHI IC Card, Medi-Cloud, and EEC HIE Networks
30.6 Results and lessons from two decades of HIE in Taiwan
30.7 Future directions
30.8 Summary
Discussion questions
References
Chapter 31. Israel’s national HIE network Ofek: a robust infrastructure for clinical and population health
Abstract
Major themes
31.1 Introduction
31.2 Background
31.3 Origins of health information exchange in Israel
31.4 Technical infrastructure of Ofek
31.5 Utility and use of HIE in Israel
31.6 Facilitators and barriers to HIE in Israel
31.7 The next generation of HIE in Israel—Eitan
31.8 Summary
Questions for discussion
Acknowledgments
References
Chapter 32. Bringing health information exchange to the Middle East and North Africa: the case of Malaffi in Abu Dhabi
Abstract
Major themes
32.1 Introduction
32.2 The United Arab Emirates
32.3 The healthcare system in Abu Dhabi
32.4 Health information exchange initiatives in the UAE
32.5 Case highlight: Malaffi
32.6 Usage and impact of health information exchange
32.7 Challenges
32.8 COVID-19 and Malaffi
32.9 Improving interoperability and data standardization
32.10 New frontiers in population health management
32.11 Summary and the next chapter for Malaffi
Questions for discussion
References
Index

Life Sciences

Physical Sciences & Engineering

Social Sciences & Humanities

Health

Health Information Exchange

Navigating and Managing a Network of Health Information Systems

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