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Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine provides a comprehensive overview of current and emerging issues in genomic data sharin… Read more
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Immediately download your ebook while waiting for your print delivery. No promo code needed.
1. Introduction
Jennifer B. McCormick and Jyotishman Pathak
2. From Public Resources to Improving Health: How genomic data sharing empowers science and medicine
Laura Lyman Rodriguez and Elena Marie Ghanaim
3. Biobank case example: Marshfield Clinic
Catherine A McCarty and Deanna Cross
4. Multidirectional Genetic and Genomic Data Sharing in the All of Us Research Program
Katherine Davison Blizinsky, Subhashini Chandrasekharan, Sonya Jooma, Jessica Reusch and Kimberly Ann Thomson
5. A community approach to standards development: the Global Alliance for Genomics and Health (GA4GH)
Angela Page, Melissa Haendel, and Robert R. Freimuth
6. Clinical Genomic Data on FHIR®: Case Studies in the Development and Adoption of the Genomics Reporting Implementation Guide
Robert Freimuth, Robert Milius, Mullai Murugan and May Terry
7. Genomics Data Sharing
Judit Kumuthini, Lyndon Zass, Melek Chaouch, Faisal M. Fadlelmola, Nicola Mulder, Fouzia Radouani, Verena Ras, Chaimae Samtal, Milaine Sergaine, Dassen Sathan, Anisah Ghoorah, Raphael Sangeda, Liberata Mwita, Upendo Masamu, Samar Kamal Kassim, Zoe Gill, Zahra Mungloo-Dilmohamud, and Gordon Wells
8. Data Standardization in the Omics field
Judit Kumuthini, Lyndon Zass, Melek Chaouch, Zoe Gill, Verena Ras, Zahra Mungloo-Dilmohamud, Dassen Sathan, Anisah Ghoorah, Faisal Fadlelmola, Christopher Fields, John Van Horn, Fouzia Radouani, Melissa Konopko, Emile Chimusa, Shakuntala Baichoo
9. Data Sharing: The Public’s Perspective
James O'Leary
10. Genetic Data Sharing in the View of the EU General Data Protection Regulation (GDPR)
Pieter De Smet (LL.M.) – Mahsa Shabani (PhD)
11. Genomic Data Sharing and Intellectual Property
Jorge L Contreras
12. Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine
Dimitri Patrinos, Michael Lang and Ma’n H. Zawati
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