Deciding with Children in Pediatrics

Children's Participation in Healthcare Decision-Making

1st Edition - November 4, 2024
Editors: John Massie, Georgina Hall, Lynn Gillam
Language: English
Paperback ISBN:
9 7 8 - 0 - 4 4 3 - 2 2 3 2 3 - 5
eBook ISBN:
9 7 8 - 0 - 4 4 3 - 2 2 3 2 2 - 8

Deciding with Children in Pediatric Healthcare: Children's Participation in Healthcare Decision-Making provides both the ethical underpinning and practical strategies to meaningfu… Read more

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Deciding with Children in Pediatric Healthcare: Children's Participation in Healthcare Decision-Making provides both the ethical underpinning and practical strategies to meaningfully involve children in decisions that affect their healthcare. The book assists clinicians in bringing the perspectives and values of the child forward so that their preferences can be meaningfully incorporated into decision-making, or appropriately justified when this is not possible. This is to both improve healthcare delivery and serve the best interests of children—now and as ongoing decision-makers in the future.

The book begins by reviewing theories underpinning the concept of then presents models for making healthcare decisions with children. Further, clinicians and ethicists come together to demonstrate how to include children in specific cases that cover multiple clinical areas as well as child ages and developments stages. The book concludes with a review of questions, concerns, and challenges.

John Massie

John Massie, MBBS, FRACP, PhD, earned degrees from the University of Sydney and the Diploma of Child Health, specialist qualifications as a pediatric respiratory physician, then a PhD in cystic fibrosis through the University of Sydney in 1999. He has been a consultant in the Department of Respiratory Medicine, Royal Children’s Hospital since 1999, is an honorary Clinical Associate Professor in the Department of Pediatrics, University of Melbourne and Research Fellow at the Murdoch Children’s Research Institute. Professor Massie is the Clinical Director of the CBC, a joint initiative of the Royal Children’s Hospital, The University of Melbourne, and the Murdoch Children’s Research Institute. The CBC is the pre-eminent pediatric bioethics center in Australia with an international reputation for both clinical work and academic output. Professor Massie has published extensively on various aspects of pediatric respiratory medicine and bioethics and hosts the popular podcast show, Essential Ethics.

Affiliations and expertise

Consultant, Department of Respiratory Medicine, The Royal Children's Hospital Melbourne, Victoria, Australia

Georgina Hall

Georgina Hall holds a Masters degree in Bioethics from Monash University and a PhD from the Centre for Population and Global Health and Society, University of Melbourne. Georgina has a background in clinical pediatric ethics as a foundation member of the Children’s Bioethics Centre at the Royal Children’s Hospital in Melbourne. Her main research interest is reproductive ethics, in particular the welfare and best interests of future children born of assisted reproductive treatment. She sits on the Clinical Ethics Committee of the Monash Health network and is involved with teaching ethics to medical students at Monash University.

Affiliations and expertise

Children’s Bioethics Centre, Royal Children’s Hospital, Melbourne, Victoria, Australia

Lynn Gillam

Lynn Gillam is an experienced clinical ethicist, originally trained in philosophy (MA, Oxon, as a Rhodes Scholar) and bioethics (PhD, Monash). She is Academic Director of the Children’s Bioethics Centre at the Royal Children’s Hospital Melbourne where she provides policy advice, leads research, and has been involved in over 200 ethics consultations since 2005. In 2018, Lynn was awarded the RCH Chairman’s Medal in recognition of this work. She is a professor in health ethics and research design at the University of Melbourne in the Melbourne School of Population and Global Health. In 2019, Lynn was made a Member of the Order of Australia for service to medical education in the field of bioethics. Lynn has published widely on a range of bioethics issues and is co-author of Facts and Values (MacLennan and Petty, Sydney, 1995) and Telling Moments, a narrative approach to clinical ethics (IP Communications, Sydney 2006).

Affiliations and expertise

Academic Director, Children’s Bioethics Centre, Royal Children’s Hospital Melbourne, Victoria, Australia